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I have a very dear friend who is in the final stages of liver failure do to Hep C. He is in an assisted living facility as he can no longer be by himself. All the medical doctors do is keep him going. He is also very self destructive, although I believe he is mostly unaware of what he is doing. I have done a lot of research but only tonight found this website. I am glad for it. I will pass it on to him and let him decide. God Bless all of You!!!
Tammy
Fairfax VA Monday, December 31, 2001

Hello. I was told I had hep c 7 yrs ago but I nor my doctoer did nothing about it. I pressed him a few months ago and am suppose to start new combo treatment next month. Had liver bio 3 weeks ago, will know results when I go back to spc.I am 50, still feel wonderful and am damned afraid to go on treatment after hearing all the horror stories. I have 5 yrs to retirement and need to work until then. Lost in mi.
Keith
North Branch Mi Saturday, December 29, 2001

Just found your site today (12/28/01). I was infected in 1975 but was not diagnosed until March 2001. Currently I am asymptomatic but I am an alternative regimen similar to what I have been reading here. Fortunately, my doctor wants me to wait until the new interferon/ribaviran combo comes out. Does anyone have any info about when this might happen? Good Luck to you all.
Mary
Orlando FL Friday, December 28, 2001

I found out I had Hep C in July. I belive I was infiected in 1985 from a blood transfustion. The lab showed only a light amount of Hep C showing in the liver but heavey scaring. I'm suppose to start combo treatment next month.
Terry
Peoria AZ Friday, December 28, 2001

I was diagnosed in 1995,Had a major car accident in 1989 in Ontario, Live in British columbia now and am with the traceback system (RedCross). I am a lucky one so far, No symptoms as of yet (Knock on wood) Liver is good.wish everyone a very Merry Christams and healthy happy new year...
Terry
Vancouver.Ca Thursday, December 27, 2001

Oh My Gosh, this is fantastic, there is hope.
Rebecca
Clarksville Tn Tuesday, December 18, 2001

After reading about half of the guest book I had to stop. I've had chronic Hep C for 2 years and all I can say is that it really breaks my heart to see others going through the anguish that it takes to keep it together and to find help through other ways and means,but, knowing others are fighting just as hard as I am to stay alive helps me to keep going. Thanks for this site. God Bless and Keep Fighting.
Ken
Bradenton Florida Thursday, December 13, 2001

Great site! My husband was recently diagnosed with Hep C and I was frightened! But thanks to your site & to Kev's story, I feel hopeful!
Peggy
GA Thursday, December 13, 2001

Hey, I have been diagnosed with cronic active HEPC for almost seven years. No significant response to an eighteen month therapy of interferon. I was left with Dr's that were more than willing to prescribe pharmacuticals to temper the symptoms, but with little encouragement for any other course except wait for the liver to die and we will see about a transplant then. "And the hits just keep on coming!"
Lawrence (Larry)
Colleyville TX Monday, December 10, 2001

i was told several years ago i had hep c after giving blood to the red cross i,m not sure what to do now because the doctors i have seen seem to be clueless i have had it seems for over 30yrs besides being very tired all the time i seem fine for my age (late 40,s)i have had a liver biopsy and was told there is slite scarring but i,m still scarred and want to talk to someone else that is facing this doctors seem useless
john z
seymour in Sunday, December 09, 2001

I just found out I have hep B and C ....this site has helped me to understand the dreaded dragon ...thank you all so very much !
stephanie
oquossoc me Sunday, December 09, 2001

Great site! I just sent the link to a friend with hep-c hope it helps him.
Ed
Dayton TX Wednesday, December 05, 2001

Found out that I had hcv after donating blood a few years ago. Did not have insurance to cover treatment and had no support from family or friends. After going into my own private world and denial I have broken out and I am trying to do something about it! It is so hard to do when your are alone!
Dale
Charlottesville VA Tuesday, December 04, 2001

I just found out tonight that one of my oldest friends has HepC. Your site has helped me to better understand what he will go through and how I can help him go through it, So Thank You for all the work you have done.
Jessica
Beverly Hills FL Monday, December 03, 2001

I Have Chronic HCV & HBV but have been in remission for 23 glorious months after spending a miserable year on the combo. Thx for this site. Good luck to all how suffer this awful disease.
Kathy
Boulder City NV Sunday, December 02, 2001

I found out June 2000 that I was the proud owner of a HEP C virus and I have been trying to determine when or how I might have contracted it. I am just starting the newer treatment (next week, my first). I am in level two and it looks like I have had it 12 to 15 yrs. I would like to find out more re: the gamma gobulin transmission in the 80's.
mytmouse
san angelo tx Tuesday, November 20, 2001

I contracted the virus in 1974 and didnt find out until 1994. Now in stage 2. I wanted to share that milk thistle helps alot and so does prayer. Thank you for being here.
Sandy
Merced CA Tuesday, November 20, 2001

I was just diagnosed with hep-c in Sept., and these web sites have been very helpful to me thank you.
Darla
Early Tx Thursday, November 15, 2001

Hard drive crashed and had to start over with everything (data, software, settings). Been all over the Web (so I thought) and never been here before. Great work! Thanks
Ben
Denver CO Tuesday, November 13, 2001

I was told in June of 2001 that i have Hep C.Just found your site. It is great and it feels so good to know i am not alone.Keep up the good work and God bless you.
JoAnn
franklin ky Sunday, November 11, 2001

Thank you for your site, It's great. I have just found out this week that I have HCV and going to a specialist next month. Thank you for your regime and your praise to the God. God Bless, Carol
Carol
PA Sunday, November 11, 2001

I found out about 6 years ago, but I'm sure I got it 27 years ago during an emergency room blood transfusion. I've barely endured and survived the drug therapies and have instead settled on dietary adjustemnt, herbal supplements and being my own caretaker. I feel alot better and don't have to battle the side effects of drugs. Information is power and this website is a great service to those of us with this disease. Thanks.
Walter
Miami FL Tuesday, November 06, 2001

have recently been diagnosed with hep c although i feel i have probably had it longer. has anyone tried the colloidal silver/ i have been taking liverite and have now had to increase the dosage just to be able to get out of bed in morning. i was amazed that doctors don't know anymore than they do about this. i have no medical insurance and need to know where to go from here
fran
queen city tx Tuesday, November 06, 2001

I found out that I had chronic hep-c eight months ago. I have been on peg interferon alpha 2b in combination with ribavirin for six months. things are going ok but I'm very sick alot the time .I also have developed arthitis witch is very painful and, has kept me from returning back to work. Good Luck to everyone
Steven
Laconia NH Tuesday, November 06, 2001

hi i also have hep c I'm not a good candidate fortreatment but their going try the interferon again. i would like to tell my children eric krista aaron and alicia my granddaughter my mom, my sister leslee and all other few close friends and family that im sorrythey have had to live a nightmare witha mother being sick for the last 8 years and for being by my side and that ilove them very much and i hope a cure is found soon so that they can have there mother back love mom
teresa
st paul mn Monday, November 05, 2001

I found this site encouraging I've become very ill and I'm trying to depend on the Veterans Administration for my Hep C treatment needs. It seems as if America forgot about me April is as soon as they can get me to Richmond, VA for biospy I started requesting help from the VA Nov. 2000. My illness has caused me to drop out of school for now I guess I will seek help elsewhere.
Keith
Athens WV Monday, November 05, 2001

I Found out I had hep C in the spring of 1999. That was the first I had ever heard about it. As with most of us it was quite devastating. I was always so energetic and now I seem to be always so tired and have quite a bit of trouble sleeping. I would love to share our common problems. Thanks for starting this website.
jan
OLD HICKORY TN Sunday, November 04, 2001

Great Site! Husband received info today after donating blood that he has +antibodies to hep-c, +anti-hcv supplemental test and hct nat (UN) reactive. He had 15 units transfuesed in 1976, and was on short term dialysis after a motorcycle wreck...that is the only link we can find to hep-c. God be with us all.
Linda
griffin ga Friday, November 02, 2001

Very nice site. I am a 22yrs paid F/F with the City of Stamford CT. Good Luck with your fight. We just lost one of our brothers to Hep-c.
Rohn
Bridgeport CT Thursday, November 01, 2001

I have had Hep C 25 years, first diagnosed with "serum" hepatitis in 1976 (I was 16). Now they call it Hep C. I have Stage 4, which is Cirrhosis. I contributed to that by being a drinker my whole life. Of course, I do not drink now. I am on the PEG combo. It sucks, but I am doing what I have to do. I also take Milk Thistle and Alpha Lipoic Acid, have stopped eating meat, and whatever else I have to do to try to stop this virus' progression.
Jamie
Tampa FL Wednesday, October 31, 2001

I found out several months ago that I too have Hep C & this has mentally consumed me ever since. I'm suppose to start treatments next weekend & I am excited & at the same time very very nervous. Thank you and everyone else for providing such wonderful websites for those of us that need the education, information & friendship.
Vickie
Hermitage TN Tuesday, October 30, 2001

I found out that I have Hep C six years ago but didn't check into it much until my husband was diagnosed with it last year. I went and had the blood test done and also the biopsy. They said my liver showed no signs of damage and my blood count was low. I am a single parent now and can't afford to be out of work. I want to do what I can to stay alive for my two girls but I have to be able to support them also. I am so glad that I found your site and will be referring to it often.
Paula
Pelion SC Monday, October 29, 2001

Have Hep C put have been in denial. Now that I lost my Health Insurance I am hoping to get state aid an face up to what I have. It is really scarry and having a 9 year old daughter scares me more. The site is great and Thank Kev, it's been years since we spoke until about a month ago.
Susan
Davie Fl Sunday, October 28, 2001

I just found out that i got hep-c for how long or how bad i don't no yet i got some info about hep-c
not sure what to think just glad my wife&kids wasn't infected.if i wouldn't have gave blood for the red cross i wouldn't have known about the disease.my prayers go out to every one.
mike
owosso mi Saturday, October 27, 2001

I just found out I have this and have my firt appointment with a Gastroenterology assoiate tomorrow.I guess my voyage begins here.
Robert
Somerville Ma Thursday, October 25, 2001

I was searching for info regarding hep c 1a. Found your site, iam in awe of the people affected by this disease. I start treatment in two days, iam scared. Thanks for sharing your site.
DONNA
SECURITY CO Wednesday, October 24, 2001

I hate this disease. I'm scared an lonely.
bobby
sedalia ky Monday, October 22, 2001

Excellent site. Thanks
Rita Johnson
Sunday, October 21, 2001

Hi Kev, you've got a great web site here. I've emailed you before about a year ago to get permission to link to the HCV Wall from my web site. You were great about it. I like the idea here of the singles list with the email addresses...I think I'll add one to my site for HCV single Christians! It would be nice to meet more single Christians.
Karen
Tyler TX Saturday, October 20, 2001

HI Kev! I know I've run into you before... but this is the first time I've seen your forum. WOW! What a great job! This is a great resource... Thanks for creating a place where people with Hep C can find information on alternatives! I'll see you around I'm sure! :)
Bonnie
Madison WI Saturday, October 20, 2001

I got the call from my doctor today. I have Hep C. I am still just trying to absorb the news. The doc is referring me to a specialist since my something-or-another (not familiar with all these terms yet) is high. He said it isn't really bad, but isn't normal either. I am just looking into the disease, as my reaction is to arm myself with some knowledge. I am glad to know this place is here. Thanks for listening.
Trish
Mt Juliet TN Friday, October 19, 2001

Thank the Lord there is a site like this! I'v just been diagnosed with stage 2 Hep C, and am unable, pschycologically to start the Interferon/ribavirin treatment, due to Panic disorder and acute depression. I'm hoping that an alternative treatment will help. My prayers are with all who suffer this horrible disease.
Mike
Telford Pa Thursday, October 18, 2001

I just read the names! God bless to all! I have the disease and am glad to know that I am not alone.
Crystal
salem OR Tuesday, October 16, 2001

I just visited the memorial...Wow.
Kev. you are the best...I read each and every name.
It hits home...God is in control...I have stayed out of the Hep C circle for awhile now because of all the negativity and just wanted to stop in and say hi...I am still very positive and healthy and not on any form of shots...I call them here... Kev. I can never thank you enough for helping me out when I needed it...And say what about One life to live...It is getting good
Ruth
Grand Rapids Mi Saturday, October 13, 2001

Hello and good health to all, Will be started on peg-interferon and ribavirin next month. I can not wait to start but at the same time fear what it will bring. Remember me in your prayers and I will do same for you.
tom
nyc ny Saturday, October 13, 2001

I am very glad I found this website, I was beginning to think I was the only person with hepc. But now I know I am not, thank goodness. I was told I had hepc in May 2001, and I have recently started taking the combination therapy. I am glad I now have people to talk to, I don't feel alone anymore, and I know my boyfriend feels the same, he was concerned about me, still is, but he knows I now have somewhere to turn when he can't help me. Thank you.
Kelly
Murfreesboro TN Friday, October 12, 2001

I'm a 52 yr. old female who was diagnosed with hep c in 1998. Have gone no farther than to have a liver ultra-sound. Feel healthy enough, but do have a million questions. I'm so happy to learn I'm not alone and that there is somewhere to turn for info. Thank you so much for caring for others enough to share your education and insight. Am looking forward to talking with others who are also "afflicted" with this silent and lonely disease.----Nancy
Nancy
corpus christi tx Sunday, September 23, 2001

Husband and i diagnosed 1983 and with a healthier lifestyle we have stayed well untill now. will someone like to talk? luv this sight!!!
Jeri
Molt MT Wednesday, September 19, 2001

I was originally diagnosed with non-a/non-b hepatitis in 1983, I had had a blood transfusion in 1982, although other risk factors involved. I have cirrhosis, varices, fibromyalgia and general fatigue. However I try to keep the disease in my liver and not let it affect my life. Just for today I feel well. I tried Interferon for 3 months in 94 - it just destroyed my white blood cells. I exercise everyday, I do not take any medication, I feel fine today.
Penny C
London uk Wednesday, September 19, 2001\

I have hep C, Advanced Cirrhosis, ascites, enlarged spleen, gallstones and a host of other stuff. I can relate to the finality of Hep C and it's relentless effort to destroy us. Was told today that I have a 50% chance of making it two years. (Still doing the math on that one!HA) I have my belly drained on the 21st and basically says there is nothing more to do.......I'm not going to give up that easy.......Good Health and a Happy Life to All.....Glenn
Glenn
Bristol TN Wednesday, September 12, 2001

Diagnosed stage 2 grade 1 Oct. 1998. Completed 6 months combo therapy fall 1999. Did not respond!!! Never have been the same since doing the combo. My advice is to make sure you really need to do that wicked treatment.......... Don't be a "guinea pig" for statistics!!!!! Having my 2nd biopsy this friday 9/15/2001 to get an indication of progression of liver damage. Prayers graciously accepted !!!! Slay the dragon within!!!!!! rick in tampa,fl
Rick
Brandon FL Monday, September 10, 2001

My spouse has just learned that he has Hep C. We have spent the last week educating ourselves about this disease.We have yet to consult with a specialst. Although we immediately made some drastic lifestyle changes. We are very interested in seeking remedies for liver rest and repair. Thank you for this site. We look forward to finding info and support .
Cathy
Chandler AZ Sunday, September 09, 2001

I am so grateful for this website and for the support of all my fellow heppers. I have met some wonderful people thru this website. I am especially thankful to you for bringing Mike and I together. God Bless and keep all of you. We won't let this virus get the best of us. Stay positive and keep up the fight!
Deborah
Deer Park N.Y. Tuesday, August 28, 2001

County Health programs don't help those of us with HCV/Cirrhosis very much. Thanks to Kev for sharing the results of his exhaustive research on herbal treatments. This is just the kind of help we all need! Thank you for reinforcing the info I've found on the pertinent herbs. Gives me hope.
Connor
Ft. Worth TX Monday, August 20, 2001

Hello again. I just revisited this wonderful site. I too am a nurse with HCV, type 1b. I got this terrible disease from my job and just recently have become unable to work anymore. I am about to start the new treatment and would ask for everyone's prayers that it works. God Bless all of us with this terrible disease and hopefully with the new studies and research now possible thanks to our wonderful president maybe we can find a cure. sincerely deb
Deb
Missouri Sunday, August 12, 2001

Thank you for all the information offered here. I was diagnosed with Chronic Hep C in Feb 2001 and have learned a lot from you. I felt so alone in this. Thank you and God Bless You.
Peggy
Pattonville TX Sunday, August 12, 2001

I have never felt so attacked and alone hep-c has been quite the "bitter pill" i need some friends in this overwhelming fight.
RUSS
random lake wi Friday, August 10, 2001

Thank you for such a wonderful site. I tested positive for Hep C in 1996 and now am having Autoimmune symptoms. I have found so much support and information online and this site is one of the nicest. Keep up the good work and God bless you.
Paige
San Antonio Tx Saturday, August 04, 2001

I was diagnosed with chronic hepatitis C and end stage liver disease after I had a bleed Mother's Day 1999.I didn't have a clue what was wrong. Now I am on the transplant waiting list at University of Wisc. Madison. I will use a lot of this information to help me through this life crisis. Thank you!
Anita
Dubuque Ia Saturday, July 28, 2001

Thank you for this site. It has a wealth of information. Kevin's warning about, Cats Claw and the auto immune system may have saved my life. Never would have known it is not on the label.
carol
kansas city mo Friday, July 27, 2001

Thanks for the website. Would like to correspond with others that have the same and also ideas on dealing and keeping it under control I have no symptoms I'm 50 years old. Thank You
Bill
Merced ca Friday, July 27, 2001

found out 3yrs ago didnt relly bother me (so much) now i have a son and it bothers the hell out of me thinking about treatment pretty scared to try any words of wisdom????? any body in the kalispell,mt area?????
steve s
kalispell mt Friday, July 20, 2001

I was diagnosed with chronic persistant hepatitis C in 1995. I did nine months of interferon injections. The doctor stopped tratment because of severe reaction to the medicine. I suffer from chronic fatigue . My best friend died on 7-13-01 due to the disease.
Danny
Columbus Ks Wednesday, July 18, 2001

I have Hep C, WOW that felt good to write and say out loud and not feel ashamed. I am positive 3 years, vitamins have kept me alive....A good support source like yours is essential, and thank all you that give your time and energy (that I dont have) to us.I am learning to live with it, it gets a little easier every day, but awareness and testing is cruicial. Take good care of yourselves and GOD bless.
chris w.
allentown pa Wednesday, July 18, 2001

Hi I was told I had hcv in 1997. I have 6 children. I pray none of them contracted this disease. MY prayers are with all of you. And let's keep in prayer that they will find a cure.
Patricia
Harvey La Tuesday, July 17, 2001

Hi! I was told I have hcv 3 years ago. Been through interferon and combo neither one worked. Really like the web sight. I will pray for all. Thanks.
Roanna
Tennyson Ind Sunday, July 08, 2001

I was diagnosed 2 years ago, received blood transfusion after the birth of my first child 18 years ago. Have completed 1st bout of combo treatment. Labled nonresponder. Am recuperating as I write from my liver biopsy will get results in the next couple of days. God bless all that endure the unknown...
Carla
Lorena Texas Sunday, July 08, 2001

I was diagnosed in June of 1999 and believe that I was chronic about 2 yrs based on my symptoms looking back now that I know much more about this illness. I had all the usual blood work and a liver biopsy and started combo treatment in October of that same year.
Tony z
york pa Thursday, July 05, 2001

We just found out today that my sweetie has Hep C. I have been on the internet trying to find info and a site like this. He hasn't gone to the specialist yet, our primary care physician called him to let him know after being tested for levels from a med he was taking. I was looking for a site like this to find information from people who know. God bless all of you and especially those responsible for making this website available. Thanks.
Paula
Upper Marlboro MD Wednesday, July 04, 2001

i have always loved a good mystery, i just never thought the greatest one of all lived inside of me !
lynn
plainville CT Saturday, June 23, 2001

Just found out i have hep c. I have 5 daughters all taking it different. I guess i am looking for answers and info.
Sandra
Lincoln Ca. Wednesday, June 20, 2001

I just found this website and think it is very informative, gives others a chance to vent frustrations, gain knowledge and have control over what type of "therapy" to choose. In '85 I was in a car accident and got Hep C from a transfusion. I got multiple broken bones, 3rd degree burns and ended up losing my right leg below the knee. So remember, when you think your life "sucks" and you are very, very depressed, just think....there is always someone else out there who is worse off than you are!
Debbie
Ft. Lauderdale FL Saturday, June 16, 2001

I was diagnosed with HVC in 1997. Since then, I received therapy with interferon and the combo . I didn't respond, so I started natural therapies. The last one I tried is based in the Aloe Vera gel , and garlic capsules along with some others products. It worked better than the others I tried before. I'd like to contact some other spanish speaking people. So please if you want, write to GERARDO at GERARDODUARTE@CS.COM. Thanks, and God Bless all you guys.
GERARDO
LONGMONT CO Monday, June 11, 2001

I am new to this site. My son and I both have hep C. I got it from a blood transfusion and gave it to him when I was pregnat with him. I live in a small town with no support groups. I would love it if someone would contact me, to talk. Every day I pray there will be a cure.
Sue
Vernal UT Tuesday, June 05, 2001

Absolutely Great Work Keep it up If all us with Hep C stick Together and work as Hard as Some of us do There's Hope Thank You my Friend for Sharing your Knowledge and Talent
Tony aka WIZofWAZ
The Land of WAZ Thursday, May 31, 2001

I am a nurse, 47y/o. Diag. HepC Nov. 2000. Biopsy was in March 2001 showed grade 2 with bridging fibrosis- waiting for Peg combo this year.... I had my children & husband tested & they all tested negative. I am unsure how long I've had Hep. C but am making diet changes, adding vit's and milk thistle, etc. I enjoy all the info. and encouragement on this site.
Karen
Laurel MD Monday, May 28, 2001

hello i'm Patrick and i'm an hepatitis c patient...i wish you good luck to all of you
patrick.
leuven (belgie) belgie Sunday, May 27, 2001

Tks for a great site. I have Hep-c since 1986 and am on dual therapy for the second time. Only a dead dragon is a good dragon !! Keep up the good work !
Uwe
Karlsruhe,Germany Wednesday, May 23, 2001

Thanks for the site.I wish everyone out there the strength to deal with the problems and pain arising from this virus.Good luck and best wishes! Andrew.
Andrew
Amsterdam Holland Tuesday, May 22, 2001

Thanks for the site. I was diagnosed in 96 and just blew it off when the doctor told me the odds of interferon not working. I just started the combination therapy and am hoping for the best. I felt so alone and am glad I found the site.
Tim a.k.a. Wildone
Victorville CA Sunday, May 20, 2001

Let's not give up!! Keep up the fight!! Thank you all for your support and this website!!
Deborrah
Deer park n.y. Tuesday, May 15, 2001

Thanks so much for all you do!
Deb
Republic MO Saturday, May 12, 2001

I love you all. Thanks for such an inspiring site.
Amber
New York NY Monday, April 30, 2001

Just wanted to say Thank you for making it easier for me to contact my senators, congress etc. I just sent my first e-mail out today. I have HCV,and ESLD. so thank you for such a wonderfull site.Sincerely Bonnie
Bonnie
San Jose Ca. Thursday, April 26, 2001

i like ur page it is very colorful to us 2 us!!!
dd
pgh pa Wednesday, April 25, 2001

Thank you KEV'S for your story and all the info that you put here in your site, please know that you have helped many people, including me. GOD BLESS YOU.
Banana
Reno NV Friday, April 20, 2001

Good info on the liverite - I didn't know about that and have bouts of fatigue - Thanks!
Eric
Nashville TN Thursday, April 19, 2001

Thanks for all the many answered questions... and for sharing your personal experiences!
Rick S.
Kerrville TX Wednesday, April 18, 2001

Hi friends! I sure wish the federal government would help us with funding. Keep up the great work!
Jim
Frederick Md Tuesday, April 17, 2001

thank you for a very informative and useful web site i have been helped a lot. your board is useful and amazingly has a common theme besides the hepatitus we all share.
roger
nevada mo Thursday, April 12, 2001

Very informative site, GOOD WORK
Mike M
New Boston NH Thursday, April 12, 2001

Hi, I'm really glad I found this web site. It is very helpful.
Christine
Memphis TN Sunday, April 01, 2001

Thanks for you information.
Jennifer
Las Vegas NV Saturday, March 31, 2001

Thank you for this web site.Haven't found one down under. Start the combo therapy tomorrow. Think I have only had hep C for 2 years yet it's having field day on my liver..Love the swelling of the stomach. Don't know from day to day what to wear ha! Having problems getting into the chat room..Again thank you. Kind regards.
james
sydney/australia nsw Thursday, March 29, 2001

hi my name is harry 50 years old i have hep.a.b.and now c found out 2 years a go have been on treament a nonresponder waitting for peg to come out i work everyday but i am so tire getting scare dont know what furture will turn out x drug, use to work 3 jobs now have hard time working 1 hope this vires will get under control for us(anybody that has it) harry
harry
CLIFTON PARK NY Sunday, March 25, 2001

I am a newly divorce mother of 2 and just found out 2 days ago that I was positive for Hep. C. I am scared, lonely, and just trying to get all the information I possibly can. I pray to God that He will be with us all!
Renea
Waynesboro PA Saturday, March 24, 2001

I had to insist on the blood test and the advice I got was "take care of yourself" We're lucky we can read and use a computer! There are too many who don't understand the diagnosis and continue to infect others.Let's get real: "Yes, you have to use a condom. No, you can't borrow my toothbrush." Thanks for your site and others like it. Wish doctors could dispense sites as easily as perscriptions...
wen
Charleston WV Saturday, March 17, 2001

I have been reading the message boards for over 6 months and it has been really helpful. I was diagnosed one year ago after giving birth. I am 23 and hopeful that I will beat this.
Jennifer
W. carthage New York Thursday, March 15, 2001

Hello everyone,just found this site tonight. I'm out here on the high plains of Kansas with little support. I was diagnosed in 1996 and I have gone through one year of interferon and ribaviron which included the 30 day induction of 5 million units of interferon per day. (AND I MADE IT!!!!)
rebecca
hays ks Thursday, March 15, 2001

Will be starting Peg soon. Please email if you know anything about this. Thanks for this site.
Marlly
CapeMay NJ Monday, March 12, 2001

I was diagnosed on 2/20/01 and find out tomorrow what type and how "sick" I am. I'm scared and hopeful. Thank you for this site! :)
Sherryl
Wenatchee WA Monday, March 12, 2001

My son, age 17, recently tested positive for Hep C. and I'm wondering if the initial test could be a false positive? He has mildly elevated AST and Alkaline Posphastase. He had open heart surgery as an infant in 1984. Scheduled to see specialist at USC 3/28. Waiting is awful. My son is convinced he does not have it. I'm reading everything I can. You think chances are he really has Hep C??? Please advise. Thanks
Nancy
Fullerton CA Saturday, February 24, 2001

There is a lab doctor that really hate me, and she say that I have HCV positive... I know that this is not true because I dont do drugs, I dont do alchohol, no blood transfusions, my husband is HCV negative, and my liver enzyme is normal. Now... according to the doctor I have HCV by Riba positive. I know that this is another false remark, but if it is true Im wonderng were it came from, is it because I work in a Hemodialysis center as a nurse.
lee
not living in USA lee bii zue Friday, February 23, 2001

Tonight my father in law called me to say he had just been diagnosed with Hep C. I started looking it up on the internet and I can not believe what I am reading. This is very frightening. I had no idea it was as serious as it is. My head is spinning. I really need to know how best to offer support to him. He is in his late 50's and lost Mom about 15 years ago. His life revolves around the wine society. How ironic that is now. Please send any info or words of encouragement that you can. Thanks.
Robyn
Corona CA Wednesday, February 21, 2001

I was diagnosed with Hep c at a plasma donation center in '89. I was really depressed at the time on another issue so I gave my diagnosis little thought. I soon thereafter went to long-term rehab for a drinking habit.
It was not until lately when I started to feel a bit nausious, I guess that means that my liver is swollen and what I eat is pressing on a tender spot. I hope for the strength to live sensibly for now and the coming future. Thank you
Brian
Orange CA Wednesday, February 21, 2001

Hi,as far as I know I am not infected with hepitis C. My fear is that I could be. After reading the stories in this site I was hoping for some opinions. My X husband is positive for Hep C most likely from a blood transfusion in '84 - we divorced in '94 Needless to say we were very sexually active during that time. How at risk am I???
Paula
Me Monday, February 19, 2001

Hi, I was diagnosed with chronic hep C and liver cirrhosis in March 1998.I was hospitalized and given 6 units of blood within the next few days.I was so swollen in my stomach area,it looked like I was going to give birth any day.They stuck in needles a couple of times to drain fluid out of that area.I had to change doctors shortly afterward because of ins. coveraged. My doctor now still gives me the same two diuretics my original Dr. gave me then.My blood counts are always low,last week my white blood count was only 1.9 and my platlets only 30.I seem to be getting tireder and more depressed as each day passes. I've had a sonogram but never any biopsy's.Dr. never even wants to talk about treatments.I don't know if its because my insurance don't cover it or what. I just got out of the hospital 2 weeks ago with a viral pneumonia because my white count was so low.I'm not sure how I contracted this diease,but I think it was from a transfusion I recieved while being operated on. I'm 46 and 3 years ago was very energetic,not anymore.I would greatly appreciate any help or literature anyone could send. This is my first time on this website and think its great.I'd also like to appologize for my spelling. Thank-you for your time, Sincerly Rich
Rich
Spring Hill Fl Sunday, February 18, 2001

Hi I am newly diagnosed, 4 weeks ago, dont see specialist until March. Cant wait. I have been sick for 5 months, took doctors forever to figure it out. My liver enzymes are elevated, and I have an autoimmune disorder known as sjogrens syndrome. Just cant wait to see what I am fighting and how bad the damage is. I could have gotten infected as far back as 1984, tattoo's I have many of them. Wont do that again. I am having problems with family understanding how sick I am. Depression is setting in and wish doctors could have better bedside manners, the one I had at the health clinic was awful, refuse to see him again. He told me my test was negative, good thing I got copies of my medical records because I may have never known it was a POSITIVE result, nurses made up excuse he did not have the hep c report. will never know thanks for listening Melinda
melinda
Virginia Beach va Tuesday, February 06, 2001

I was in teh hospital a few weeks ago they think I might have hep c I just took the test. when I was in teh hospital the doctor broke my confidentiality and told my wife I had it does this happen in treatment
phill E
chicopee ma Sunday, February 04, 2001

I am living with Hep-C, I am new to the internet and would like to receive any info you might have in Spanish (website) or english. Thank you for your web site. Hope to hear from you soon Yamila
Yamila
philadelphia pa Friday, February 02, 2001

First time I have visited your outstanding web site I was tested and told I had HCV in April 2000 by the Sacramento County Heath Dept. I was send to UC Davis Med Center where I was treated like I was a nonperson. I waited five and half hours to see a doctor. I was told this doctors thinking if he was thinking at all his plan of treating HCV bloodwork and not a damn thing after that I was back at UCD two days before my next appt. With doctor blondie I was admitted to the ER I had a infected gut lining e-coli bleeding from my mouth nose blood in my stools uren everything that could go bad didn't. Thank the lord I got over that little battle. I have been back muti-times at UCD ER for bigger wars and won those fights but I can't go to much longer I have just so much fight left i'll keep on swing'n til I can't no more I won't quit hope none of y'all will also it's hard not too' again great web site god bless all of you. GK sacto ca.
Greg K
Sacramento CA. Thursday, February 01, 2001

I'm looking for some support in my area or any one close. I've been fighting hep for a year. I'm failed the first treatment do to the side's and lack of support. I want to try it agian ..I'm a single 40yr. old,...still in good shape, if any women are interested. I would like support from all. Most of my friends turn out not to be friends and have headed for the hills...I love to surf fish..to any gut who want s fishing budby. hope to here from some one. steve
STEVE H.
OceanView DE Tuesday, January 30, 2001

This is my first time on this site. I am so glad I decided to join. I have had HCV since 1992. I had several surgeries for female problems and never seem to recover after the last one I had I went on interferon treatment for 6 months and it worked very well for me. I believe I felt that this was the only way the Lord could get my attention, since I was living the rough life. It was very hard for me because it took many visits to the doctor before they realized I had another illness. They would say it was emotional because I was going through the change of life early. But after fighting with them for a year I finally had a diagnosis. Its been rough but we can do it with each others help. I'll pray for all of us. Would love to here from you. Just by joining the site, I know it will make me stronger because I can reach out to all of you.
Lynnette
Hammond Ind Friday, January 26, 2001

hi, i have had hep-c for 6 years now i would imagine. i have been on treatment and it only kept everything under contol, i did not have any side effects. i am now waiting for peg-interferon to be approved. please feel free to e-mail me anytime i sure wouldlike to compare notes. i hope to hear from you all soon. ((TAKE CARE)) bernadette
west mifflin pa Sunday, January 21, 2001

I've had hep/c sent 1971 didn't really know about it until 86. Was told in 95 that I would need a transplant. I got one in May of 99. I'm doing great I went on the intreferon 4 weeks atfer transplant.On it for 1 year, did very good on it, no side affect from it. I'm 50 years old, and for my birthday my two sons and two of my doctor from UCSF climded Mt. WHitney.It was great,I had no problems climding it up or drown. Everything can work out with the help of GOD! Larry Peichoto
Larry
Hanford CA Saturday, January 20, 2001

I find your site very interesting and informative. I would like to know if other hep C victims experience a lot of other problems such as arthritic conditions, etc that their physicians argue whether the virus is causing or the conditions are completely separate problems. Can anyone please advise???
Paula
Collinsville IL Saturday, January 13, 2001

Hello, I am 47 years old and diagnosed with {HCV}. Have just finished six months of combo, treatment, and will continue on this for another 6 months. The side effects from the Interferon is the most painful experience I have ever had, and the mental side efects are as bad as the physical. This is a GREAT SITE, and is very helpful to get information. Good Luck to all you {HCV} people, and may God be with you.
Bruce
N Iowa Friday, January 12, 2001

I am happy to say that I stumbled on to this site surfing tonight and just finished reading all of your story's. I must admit I had no idea how many lives this disease has affected. In February of 1998 my 39 year old husband was rushed to the emergency room with a massive (bleed-out)and diagnosed with Hep-C secondary to end stage liver failure. He received a shunt to prevent bleeding in Jan of 1999 and while knocking at deaths door he unexpectedly received a life saving liver transplant on April 18, 2000. Currently he is undergoing Interferon & Ribavirin treatment and is doing well. I was also diagnosed with Hep-C last year but think I may have had it for many years. We take the ups with the downs and hope for the best. Our thoughts are with you all.
Debbie
Tucson Az Monday, January 08, 2001

Happy New year. I was diagnosed 2/98, did the combo therapy for 24 weeks, non responder. lousy side effects, but acceptable if it worked ! waiting for peg treatment in a few weeks. I,m a viet vet, a firefighter for 23 years, a child of the 60's and 70's(drugs and drinking for years and plenty of "free love")blood transfusions twice in the 70's and 80's, so I had plenty of exposures. Clean and sober through the nineties and hep c positive in the new millenium. I'm learning a lot about nutrition and herbal remedies and intend to beat the dragon! I'm a single dad with custody of my 8 yr. old and too much to live for to give up. Real happy to find this site, good luck to all. CaptJJ
Jim
valley stream NY Wednesday, January 03, 2001

Just recently got confirmation of diagonosis of Hep C. Scared and ignorant, mad at self for old lifestyle, Dr. says liver enzymes are not elevated but still scared and ignorant.
Pamela
Austin TX Saturday, December 30, 2000

Was diagnosed with Hep C in June of 1999 after being raped. All in all, the new millenium didn't have me real excited! It led to almost a year of trying to escape the reality of rape, disease, and the loss of my dad. It was a LONG year. As of the end of Dec. 2000, i still have not had any help from anyone with the Hep, but, i've been almost a year without drugs or alcohol...except a beer on occasion. I contracted this in the spring of 1980.
I would like to hear how to live with this without all of the drug therapy, if possible. Would also like to hear about others who have survived it for more than 20 years...not just survived, but LIVED. Thanks.
Cheryl
Swansboro NC Thursday, December 28, 2000

hello, i was diagnosed with hep C in june 2000, doctor think's i aquired it 25 years ago!, he suggested enrolling in a trial study using the drug peg, anyone have any experience with this?, side effects etc..., i'd love to hear from you!
Bruce
MPLS MN Tuesday, December 26, 2000

I have Hep C. I'm not sure how long it's been nesting inside of me. It could be as long as 20yrs ago. I also have degenerative disk disease in my lower back. Another incurable condition. Life sure does seem to SUCK sometimes. Inspite of my health, I would like to find a place in cleveland where I can donate my time trying to help others. If anyone has info for me pls email me. Thanks!
With a Touch of my Spirit... Take Care
eydie
cleveland oh Friday, December 22, 2000

i dont know quite where i stand with this yet. my regular physician did two blood tests and both were positive for hep c. i read about interferon and dont like the effects. of course i dont know how far advanced i am and i dont even know if the tests were correct. is there a false positive? i had a tatoo done in the early eighties and i shared a needle once! that cant do it right? i wont know much till i see the spec feb 1 2000. one thing i do know i drank at our christmas party and i dont like the feeling in my upper right side. gall bladder? when i find out ill let ya know
maryellen
batavia ny Monday, December 18, 2000

Where to start ..I have CHronhns diesease as well as buchets' (both auto immune) and had extensive surgeries...now I find out that I have hep c viral load 118500...leval 2 found at biopsy - was to groggy to remember genotype - will find out agaijn am to start combo therapy Jan 15 2001. I am having trouble remebering things like how to spell and what the alphabet looks like also having major central nervous system problems....I live in an extremely rural area where teh docs come in from teh city once a month or so...any ideas on how to cope with pain (already on vicoprofren for Rhuematiod arthritous and daracette and celebrex) but the pain is getting worse a tiems I just want to beat my arms into the wall - I am a young mother of 4 so it is very hard for me to have to hobble around like an old lady....advise anyone would be appreciated ...I don't drink or smoke.I soemtimes am scared because of teh increasing confusion and mood swings - prbably from anger over having been given blood to save my life which also ruined my life.
bren
Newburg MO Friday, December 15, 2000

I was diagnosed in 1995 with chronic "C". I went thru the interferon treatment and it seemed to help for about 14 months. Then the fatigue, nausea, dizziness, juandice, etc. returned. I see my "transplant dr. for the first time next tues. After searching the net for more transplant info; it seems very overwhelming. I'm concerned about finances since I am hearing nothing but horror stories about SSI benefits. I guess I will find out soon enough!!
J. Mark
Oklahoma City OK Friday, December 15, 2000

Jean
Painesville OH Friday, December 15, 2000

Hi, Dx with hep c in 1998, 14 months of comb tx. unsucessfully. I am a RN and just settled a workman comp case for peanuts because the stess of continuing to fight their denials was getting to be to much. How many heath care workers out there who had doc. exposures (needlesticks,ect) have had problems with workman's comp? Also was denied SSI or public assistance while I couldn't work during the 14 months of drug therapy. Would like to do something to keep others from going through what I had to go through. Any anyone interested?
janp
Eagle ak Tuesday, December 12, 2000

I just got through reading Kev's story, and I can't believe I haven't stumbled on this site before now! I have been running a HCV website since 1996 and thought I stayed pretty much on top of all the HCV related stories/sites/etc on the web...but don't recall ever seeing Kev's story. Course my brainfog is bad these days so I might have been here and just don't remember <grin> Anyway, thanks for the great work you're doing. We're all in this fight together!
Elaine
TX Sunday, December 10, 2000

Diagnosed 3\2000, into combo therapy 12 wks, most side effects diminished after about 4 wks. Some linger. God has brought me here for more than one kind of healing. 8 yr old daughter (neg.) a constant light in my life. Family scared. Friends supportive. Holding my job alright. Some days I could cry at the drop of a hat, which for all my tough demeanor the rest of the time, is really silly. I'm working really hard on keeping an upbeat outlook on all of this.
Donna
Peck MI Thursday, December 07, 2000

This is my first visit to your web site, and I am very happy that I found it. I was diagnosed with the 'slow mover' genotype (the one that resists all treatments) about three years ago. The nearest we can figure is that I picked it up in the mid '70s via blood transfusion. I just got an email message from another patient that mentioned that this 'Peg' treatment is looking promising. If anyone has any information, I would be interested in hearing about it, as the interferon/horsepill treatment was not effective. P.S. - Kev, great site! Keep up the good work!
John
Salt Lake City UT Thursday, December 07, 2000

This is my second entry here. The reason that I am jumping in here is to help others that are either Military Vets that are still eligible for medical care thru Tricare, Active Duty, Military Retirees etc. There are two different Hep C studies ongoing within the Military Medical system that may lead to your treatment. I repeat tho that you must be eligible for Miliraty Medical care!!!! If you are in this group of people and want to know more, email me at juvoff@hotmail.com and I will send you the information that I currently have.
Keep the faith and let's slay the "Dragon"!
Ken
Havelock NC Tuesday, December 05, 2000

Hi, I was just diagnosed with the hep c virus two weeks ago. Tommorrow I see the spec. to see what my options are. I have also been diagnosed with Osteo Arthritise and now I can't take any anti inflamitories. I don't quite know what to think of all this. I have read the testamonies and frankly I am scared as hell!! Thank you all for being here for us all.
William
Meridian Id Tuesday, December 05, 2000

wow what the hell is hep c thats what i ask my doctor after he told me what it was i was in so much shock i did not move or say any thing i just left the offic and did not say any thing to any body i miss work for a few dayes i told my mother and my girlfrend of 4 years after a few days i never herd from my girlfrend aging its intresting that life trows a fast one at you and it hits you so hard that you dont now what to do this happend about xmas time in 1996 afer 4 years its intresting on how i look life i live one day at a time i try to enjoy every thing that i do go out more lern new things dont stop boliving in hope its all some of use have to keep going
luis
orlando fl Wednesday, November 22, 2000

I just came upon this website. I'm a new user and certain things attracted my attention.'ie..Hep C. I was interested so Inadvertentley got upon it. It was a very helpful experience just to read what other people that are or are going through what I went through! "Keep this going"
Linda
Detroit MI Wednesday, November 22, 2000

Dear Patty and Kev Keep up the wonderful work and my best to you both! Mike
Michael
Roseburg Or. Monday, November 20, 2000

It MAY be too late for me, but it would be worth it ,if it helps just one person!
Richard
St. Paul MN Monday, November 20, 2000

I have been diagnosed with Chronic Hepatitis C and have had it 30 years. During my unsuccessful trials with medications I was diagnosed with Thyroid Cancer. Since my liver is failing, and I have no or little clotting factor I found out yester what the term "bleeding out" means. Yesterday was not a good day.
David
Prescott Valley AZ Sunday, November 19, 2000

i was diagoised with this silent killer 9yrs ago,the changes i have had to make in my life has been very hard. there was atime in my life when i felt i was in total control of my life. but there are times i feel it has control of me. i am on a slue of medications because of this thing.wakeing up in the mornings taking all[12]these meds is not my favorite time of day. but don;t get me wrong i thank god these meds are here to help me. if there is anyone out there who would like to share storys with me or just talk about simular conversation please write. thanks and good luck....
maxie
clearwater fla. Sunday, November 12, 2000

In Sept. 2000 i was diagnoised with Hep. "C". Just yesterday Nov. 8th i went to see a liver speacialist. I am having a liver biopsy done on the 28th of this month (november). can anyone give me any insight on how you feel afterwards or anything they possibly can. I am not sure how i have arrived at getting Hep. "c" and neither does my speacialist. I did have a blood transfusion 4 years ago. We are guessing it was then, but he doesn't think it would show up so quickly. please e-mail to chat about this. I have a 11 year old daughter that keeps asking me questions. I am also a newly wed. i was married back in July. how does this effect a marriage. I have a lot of questions as you can see. Thank you
Susan
Mesa AZ Thursday, November 09, 2000

Thank you for making this site and info available to all of us who suffer HCV. Sites like this one and seeker site on www.delphi.com where I spend much time, It is good to know there are other sites. we have many newbees in our chat and you site helps us to direct them who seek education and solid info. Thank you again and God bless each one of you.
BriteSTR
springerville AZ Tuesday, November 07, 2000

i am trying to find info on milk thistle and other herbs for the hep c virus as i have not decided that the interferon is the way to go. thanks
deb
Friday, November 03, 2000

Im 17 and I found out that I had hep c about 2 months ago. It was really hard at first because I couldn't figure out where I got it, but now I don't really care. I forget that I'm even sick sometimes, it seems too weird to be true since I'm so young. I can't drink at parties anymore, and thats a good thing. I don't like to tell anyone in case they act different around me, teenagers can be so shallow. I don't do any types of therapy yet, and I'm hoping to stay this way. Thank you for your time. E.M.
elise m.
sj ca Thursday, November 02, 2000

Hi, my name is Wanda. I was diagnosed with Hepatitis C in Nov 1998. I started Treatments Feb 1999, finished treatments Dec. 1999. At six months post-treatment, I was still testing Negative to HCV. I am very lucky. I had recevied two units of blood in 1983, after a childbirth, and that's when they figure I was infected. I am a genotype 1a. I am very lucky to be testing Negative. This December 2000, I'll have my 12 month post-treatment test. My mother-in-law was not as lucky. Her diagnoses was too late, and without any treatments (her choice) she passed away in August of 1997, after a two year fight. Her sister, too, had been infected with Hepatitis C. After a three year fight with the 'dragon', she received a short term treatment of interferon, which was unsuccessful. She died while waiting for a liver transplant. She passed away in March of 1995. She, too, was diagnosed to late. So, HCV has really taken it's toll on our family. God Bless and Good Health.
Wanda
Canada - Monday, October 30, 2000

Diagnosed in August 2000. AST 215 - Alt 149. Have quit drinking but doctor wont treat before 6 mos. sobriety.??? Havent had a liver biopsy. I am suffering from a bloated feeling and different pains in my stomach, especially on the right side under my ribs. It feels as if there is a knot there and my guts are on fire. Wifw was diagnosed also but they tell her that she is one of the lucky ones, that her body has killed the virus by itself. I think research needs to study people like her to see why her body killed it. possible help yo us? I don't know where to turn now, as I am wondering about running the interferon gauntlet. Please e-mail me as I feel I need some guidance from someone who is going or has gone through what I am now.
Brian
Baker Fl - Friday, October 27, 2000

I have been diagnosed with Hepatitis C since 1988. Have been in the VA Medical System but feel badly all of the time. Hard to know how I will feel to get up and go to work each day. I am under no meds for the Hep C. Should I be? Recently secured health insurance to go to a private physician. My fear is that Fibrosis is a bit late in the game to help me. Thanks for the site.
Wanda
Indianapolis in - Thursday, October 26, 2000

Would like to hear from anyone who was on Rebetron therapy, then stopped (I took for 6 months) and had significant issues with depression. I started taking it in Oct 99, and stopped in Apr 00. About June 2000, I got severely depressed. The Dr. said because I don't have a history of depression, nor is any in my family, that it was most likely induced by the Rebetron.
Mike
Tampa FL - Monday, October 23, 2000

I was diagnosed with hep b about 1 year ago and I was just diagnosed with hep c a short time ago and i'm scared. If there is any way that someone could talk to me about this i would surely be most grateful. I don't know what to do? HELP! thank you for your help
Thomas Floyd
tom
hazard ky - Monday, October 23, 2000

I'm president of Hepatitis Association of DE, Inc. We met some of your people at the Phila Firefighter's march. Could you make some suggestions on how we can get our website listed & linked with other groups on the internet. Our State needs alot of help in awareness. Anything to can suggest will be helpful. Thanks
Doreen
Newark DE - Monday, October 23, 2000

Hi I was diagnosed in june of 98 and as of yet have not had any treatment. I am waiting for the new drug peg to be approved by the fda. My doctor seems to think this will be a better treatment. My viral load was 330,000 in june and it seems to double about every 6 months. If anyone out there has done the trials on this new drug would you please write me and tell me about it. Good luck and may god watch over all of us.
Elaine
Pinellas Park FL Friday, October 20, 2000

Hello. I have been on combination therapy for hepatitis c for just over six weeks. The side effects are pretty bad, but I'm getting used to them the longer I continue. It's hard to get going some days. I haven't missed a lot of work, but I feel like I should stay home and rest more than I am. I don't feel like anyone really understands how I feel. Would just like some input and words of wisdom to help me get along. Thanks. Marion S.
Marion
Denver CO Wednesday, October 18, 2000

I have hepaitits c . I started combo therapy (interferon and ribavarin). I had the wort side effects from this medication, from severe fatigue were I was falling asleep at work from one sided weakness. I stopped the therapy 2 weeks ago. I feel so much better. Can people outthere please share their experiences with me.? My boss thinks I am on major drugs and lying about how I felt. Thanks Ken
Ken
Baltimore Md Sunday, October 15, 2000

hi all......just wanted to sign on....i was diagnosed in 1991 probaly contracted in early 80's while in the service...i have been on interferon twice and combo twice with not much luck....oh well life goes on ...would really like to talk to others to help keep our sanity
Jeff
indianapolis in Thursday, October 12, 2000

About a year ago my family doctor told me that I had low levels of hepititis'c' after taking a blood test for a physical exam. After taking another blood test this year my hepititis 'c' levels shot up past a million (the test only went up to a million ml). I'm seeing a hepititis 'c' doctor in a few days. I suppose we will talk about taking interferon. Needless to say, I'm worried sick. Regards, D.S.
David
Philadelphia Pa Thursday, October 12, 2000

Found out I had hep c when I went to treatment for alcoholism. Been dry 6+ years infected 20 years ago. Just had my exit Biopsy and found out that the year of Interferon & Riboviran was for naugt. While on drug I was virus "free" as soon as I came off it was back. the only positive was the sweeling went down. When I started the treatment I was a Strong 3 on a scale of 4. Now I am in the early stages of chirrosis. They wont put me on the list for a Liver because my liver is still functioning normal. I am a little freaked as is my wife. Anyone considering the Combo therapy think hard, While on the drug my skin was allmost 60% conered with Exzema, and now 8 months later I still have 30%, and I worse off than when I started. One other big side effect for me was Rage, Never directed towards my wife but she got to see it directed at other people, it wasn't pretty, and it isn't me. I wish the medical world ould spend just one quarter of the money spent on aids research on HCV, dont you? Heres hoping someone somewhere tames the dragon. Peace be with you all. John
John
Everett Wa Monday, October 09, 2000

I am 63 years old and have known for about 1 year that I have Hep C but did not do anything about it. I had a liver biopsy 9/19/00. Shows my liver is damaged and inflammation is active. I also have a very high iron count. I was born with Coolie's anemina and received numerous blood transfusions prior to 1990. I have to decide whether or not to try interferon. After everything I have read, I really do not want to -- especially with being anemic. I am not an old 63 at all but I am starting to tire more easily. I would like a few opinions on interferon. Do you feel it is worth and suffering or just take one day at a time?
Phyllis
Palmyra NJ Friday, October 06, 2000

I have been on the combo for almost two weeks. It is really ravaging me emotionally and physically. I have worked most of the time. I am 1a, stage 2 damage and viral load of 558,000. My medical insurance is not too hot and the bills are mounting already. My daughter has quit college in Utah and moved in with me to help me and my 8 year old out. I still can't believe this has happened. Two months ago everything was fine (at least I thought it was). I would love to meet other heppers in So Cal because no one else truly understands, male or female.
gloria
Huntington Beach CA Tuesday, October 03, 2000

Have had HEPC since 1981. Still looking for a good Attorney. If smokers can get millions, than I should be able to get money due me for BAD BLOOD that I did not ask for. Smokers have and had a choice, we people that had Blood Transfusion did not have a choice. Thank you for your time.
Gomer
Duluth MN Monday, October 02, 2000

I found out in June 2000 I have HepC. My genotype is 1b which I understand won't respond to treatment. I am going to have a Liver Byopsy on Nov. 1st, 2000. I am scared about that even though I know god will take care of me. They suspect I got it 41 yrs. ago when my first Son was born. It's very hard for me to believe that but I had 2 blood transfusions then and have never done drugs or needles. Has anyone else had it that long I wonder? Thanks for listening.
Charlene
Paradise Ca Sunday, October 01, 2000

I am single in seattle, and lonely. I am a positive thinker and a big teddy bear. I found out I have hep c in 98 and have had it since 82. I am a member of the "HEPCI GENERATION".
Shawn
Seattle Wa Sunday, October 01, 2000

Kev, " THANK YOU " for saving my family and myself. You've been a GOD SENT. 30+ years of Fear,Worry,Thoughts of Suiside,Drs.not knowing How to Treat me,Not being able to get any streight answers form any Dr.,It's been total Hell. As I said,It was a God Sent. Why i pulled up your sight? Only God Knows.
Sincerely, With Love and Hope,Caring and Sharing.
Bert
West Palm Beach FL. Tuesday, September 26, 2000

i found out in dec 99 i have hepc, an a vietnam vet. so far the va wont even talk to me about it. i have done a lot of reading on the web about hepc so i know things are not too good as my latest blood test the numbers where way up. was going to put in for disablty, but after reading about the trouble the va makes on it decided to forget about as i am not the most patiencent person in the world. thankyou for listioning
eugene
melbourne fl Tuesday, September 12, 2000

I have been fighting HCV sine about the early '80s as best as we can determine from my med records. I have been in the Public Safety (Fire, Rescue & Police) work since 1972. Needless to say multiple exposures to many patients as well as needle sticks etc. In the past year the HCV has taken a turn to ESLD (End Stage Liver Disease). One of the side effects of the HCV is encephalophy. This to ANY degree may cause cloudiness of the thought processes and being at the time I was actively working as a police officer my doc at Walter Reed thought it was a good time to pull the plug on work. (Guns and a cloudy thought process could have cost me or others.) I have been through the Interferon therapy and that had virtually no effect. I am on regular follow ups at Walter Reed now and am on a transplant list at the Inova Center in Fairfax, Va. I offer any help I can be to anyone who may need it. Moral support is so vital! I also am the keeper of all my med records so if ya wanna match lab works will be happy to share! Good luck to all and hope that you see this dragon through ITS demise. Ken
Ken
Havelock, NC Tuesday, August 29, 2000

Received probably Three bad transfusions; from Irwin Memorial Blood Bank, SF. Have three strains of Hep-C. Have gone through interferon and interferon-rebo treatments. Lowered count; only to come back higher. Is anyone trying anything newer?
Ken
Pensacola, Fl Friday, August 25, 2000

Bot me and my wife have Hep C, mine has not blown up yet after 6 yrs. My wife Natalie has chronic Hep C and has under gone Interferion treatments a few years ago. The side effects were to intense for her to handle. When you are on antidepressant or manic medications the effects are intensified and she was suididal most of the time. She is scheduled for a new liver byopsy on August 25th,2000. and will know the results in a few days. Her new DR. has already talked with her about the medications and how they have changed Interferion and that if she has suicidal thoughts during the treatment she will be taken off the Interferion. Then we will be challenged with trying to find anew source of medication for Hep C. Mankind has not found a cure or a successful treatment for Hep. C. If anyone out there has a new treatment and is looking for subjects to try it, please contact us, we will listen to your case. In the mean while, I will keep praying that the byopsy results will mshow her condition hasn't gotten worse, because that's all we have left, prayer.
huey and natalie
Hot Springs, Arkansas Thursday, August 24, 2000

I do alot of investigating on this subject for my husband. He is the one who has Hepatitis C, but I have to live with the fact that I may come in contact with this disease unexpectedly. I also have two children that I worry about also. I try to find out all I can about this disease and he also has Rheumatoid Arthritis and Diabetes so if there is any one that can also help me find more information on any of these I would very much appreciate it. Thankyou
Carma
Moab Utah Thursday August 10, 2000 04:44 PM

just got taken off combo therapy. body couldn't takt side effects. loosing eye sight and heart trouble. i'm virus free as of now tho...thank the lord. still not 100% love to talk to anyone about post treatment . bless you all. remember to fight the good fight. i'm here for ANYONE who needs an ear. hang in thier.
cindy
livermore calif. Thursday August 10, 2000 02:11 AM

I just found out I have Hep C. Years ago I was told that I had a high iron count, Hemochromostis(sp). I have never done drugs and I am not a drinker. My husband has done drugs and use to drink. He had Hep. A years ago. We have been married for about a year now and we had shared a needle or two in that time. I trusted the fact that he took a lot of concern about cleaning them. Anyway, that is the only thing I can think of that could of given me Hep. C. I am not angry out him. It does not matter how you get it! It's what is the best treatment? And is there a treatment? And how long do I have to live? I am scared. I know that I will die of something someday. I have looked at a lot of websites and the more I read the more I get confused. Does anyone know where I can get the best information on treatment? One more thing... Stop trying to figure out how you got it or when you will die. God is waiting for all of us..And yes, looking at your children...it hurts..it hurts... a lot... but if you spend too much time looking...how can you get better? I know that I need to remember that..
Barbara
Texas Thurs Aug 03 2000 05:15 AM

Hi my name is Elizabeth, my reason for visiting your site is because my husband has tested possitive for Hepatitis C and I'm alittle scared!!! Your site has informed me of afew things that I didn't know about, I can't THANK YOU enough for having a site that informs people about different things such as what I am inquiring about. THANK YOU very much!!! If you are able can you please e-mail me I would like to ask you afew questions!!! Oh' and THANKS again! We need more people in life that really care!!! Sincerely,
Elizabeth
New Orleans Louisiana Aug 02 2000 10:48 PM

well since my last entry i have since had a byopsy and everything has come back positive for me . my liver functions are normal there is no swelling & no scaring . the doctor doesn't want to start me on any meds. just a check up once a year & a byopsy every three years depending on my check ups. i praise the Lord every day of my life. i will pray for each and every one of you . God bless & take care.
Jim S
Lucerne ca Aug 02 2000 05:00 AM

hello...just so grateful that you are all here and that i am not alone...thank you, godbless.....
gina
little rock arkansas 02 Aug. 2000 02:20 AM

I would like to hear from everyone.Getting ready to start a trial study on Rebetron.
Corinne
Clearlake CA 28 Jul 2000 23:29:42

I have been visiting your site since 12-99, when we found out my boyfriend of five yrs. had hepc. He went thru all the routine,biopsy,medication, injections etc. He tolerated all this very well. He has been on the therapy combo, since 1-00. This is for a little inspiration to some of the readers: Sexual transmission:; I got tested immediately when we found out and I do not have HCV, thank god! My boyfriend went to the doctor last week and the doc said his tests show no evidence of hepatitis in his last blood work. The only bad news is he has to stay on medication for another 6 months. Hopefully this will inspire some of the readers that are going thru this horrible thing. Thank you
cindy
tacoma wa 27 Jul 2000 22:59:22

Dx'd last fall on top of everything else happening in my life.... viral load over 60 million... had coninfection of Hep B along with the HCV.... am going to Dr. F. Blaine Hollinger... really like him... long story short... couldn't afford the Infergen after doing 6 wks of phlebotomy to lower my Hct... insurance wouldn't pay for daily injections as prescribed... am getting it free through the Compass program and am on second month of daily injects of 15mcg.... only side effects was on the first inject... started feeling better immediately!!! Enzymes still elevated.. too soon to tell.... write for comments on Infergen
Greg
Houston Texas 27 Jul 2000 20:03:03

Found out in 1994 that I had HCV. Surfed the web for answers right away. Now I know a little more than back then but it still confuses me. Somedays I don't know whether I'm afraid of dying or if it's not just that I'm afraid of living (forever, feeling sick all the time). Would like to talk to others for some encouragement. Good luck to all!!
Barbara
Lebec Calif. 27 Jul 2000 10:13:49

8 mos. interferion 3x wk. looking forward to the year of treatment being over, read here there is life after interferion. Great news I was begining to lose that hope. So tired, always,and this is effecting me mentaly,and phyicaly(40lbs. weight gain.) Hair has really thined to. I am happy and content more so than any other time in my life.I am thankful for this contentment. But to think of the posibilitys, that I may feel better after stopping the interferion , to have energy again, IS MY WISH ! I Any information appreciated.
Shauna
SLC Ut. 24 Jul 2000 19:05:52

I have just discovered this site and have found more info than I have in the past 3 years. I have had hep for approx 15 years and am due for my first biopsy in about 2 weeks. I am really scared about starting treatment and how it will effect my life, work,everyday living etc. If anyone can give me info on interferon eg: side effects etc I would be really grateful. Good luck to everyone. Seeya!!!
jostar
melbourne victoria 23 Jul 2000 21:12:49

I don't think there's anything that I can say here that you all haven't heard before. But, I know that we all can beat this.....together. (And with some prayer and help from God.) That belief is what keeps me going. (Stage II, IFN non-responder)
Barb
Madison Wisconsin 15 Jul 2000 23:01:18

I am newly diagnosed and have had time to accept what lies ahead. I know the Lord and that is my comfort along with a loving husband. I know with the love and support of family and my heavenly Father all this will work for the good. Through the days ahead I will remember I am not alone... God be with us all.
Sher
Chester CA 15 Jul 2000 19:42:24

Just found this website. Just finished a year of combo-treatment. Feeling so much better. I'm availabe to help--questions about side affects--moral support ( very important ). So drop me a line. Remember: Just for Today!!
Regis
Hull MA 14 Jul 2000 08:11:42

hey just read everyones entries looks like im the first from vt keep smiling im in it withall of you
alexandra
rutland vt 13 Jul 2000 23:51:30

i have been diagnost with hep c.i had a liver biopsy.sd i was in stage one.my wife also has also been diagonost with hep b,what can we do.what are the risks of each other contacting it from each other.
bill
houston texaa 07 Jul 2000 23:01:13

Steve
USA 14 Jun 2000 10:32:21

I was diagnosed 6 years ago, have been on 4 treatments, getting ready to start Peg/Ribavarin combo study any day. I have genotype 1B, never been negative of the virus but I'll never give up trying. of course have ALL the classic symtoms, on and off the meds. Have a very good state of mind, am positive and believe to keep on trying. would love to hear from fellow heppers. glad to be a member. God speed us all!
Marylouise
Pearland Texas USA 13 Jun 2000 10:15:25

I have been diagnosed with Hepatitis C just a week ago, So, while I wait to see a specialist, I need all the information I can get. Thank you for helping me to get started.
Doris
Auburn Washington USA 12 Jun 2000 20:32:02

Although I have known for 6 years I was positive for Hepatitis C Antibodies, I didn't understand what that truly meant nor was I told. My ALT and AST were elevated in January and I have been educating myself for the last 6 months. I just completed a six month picture of my enzymes and they ended up higher at the end that they were in the biginning. I also just found out I have genotype 1b but the results for my viral load isn't back yet. My appointment with the specialist isn't until July 31st. My regular Dr. today said they normally don't do biopsies anymore before treatment. I am really scared. I think the biopsy is necessary to see exactly what is going on with my liver. Hopfully the specialist will feel the same way. Oh.....My insurance is Kaiser Permanente of the Mid-Atlantic States.....does anyone know if they will work with me? Also, can you have serious liver damage without showing any physical symptoms (ie: swelling)?
Patty
Front Royal VA USA 08 Jun 2000 16:28:47

I am very curious, about how the medications and care is being paid for in the United States. In Canada we do have coverage through the government. Strict guidelines are being placed in determining who gets the interferon treatment. How does it work in the U.S.A and other countries?
Claudette
Windsor Ontario Canada 05 Jun 2000 19:39:45

My husband has Chronic Hepatitis C and a skin disease from it called Prophyria so we are trying to find out as much as possible about it - he is on the Treatment now with terrible side effects from it. Your site has helped us much and we are looking for on line support groups - thanks.
Lynn
Gulfport MS USA 31 May 2000 02:29:09

I contracted HCV from a blood transfusion in 1978. I was diagnosed in May 1998. Over the past two years, I have been treated with INF, Combo, and recently completed 24 weeks of treatment. I have been non-responsive to all. I am now being treated paliatively, until a new treatment becomes available, or transplant becomes necessary. My genotype is 3E, whatever that means. Although my Doctor advises that genotype 3 should respond to INF, he is puzzled by my lack of response. Just another little mystery concealed in the web of Hepatitis C phenom. I am now researching alternative methods to treat my problem, in combination with meditation and spirituality. I wish all success in a speedy recover from your illness, and good health, happiness & prosperity in the future. God bless you and keep you strong.
Joseph
Cincinnati OH USA 18 May 2000 11:24:16

I've just been diagnosed with Hepatitis C and i'm planning to fight this disease with alternative measures as I can in no way afford INF treatment. Is there any way to ofset the cost of the INF treatment?
Diana
Rockville Md USA 11 May 2000 17:44:31

Would enjoy talking to other people with Hep-C. Single male 50 yrs. old, retired, loves movies, gardening, loves women. 12 stepper from southeast. Yall call.
Allan
Mobile, Al USA - Thursday, May 11, 2000 at 16:11:45 (CDT)

i have little to say,and much to learn,im hoping this will be a good start
donald
cleveland, oh. USA - Wednesday, May 10, 2000 at 20:14:03 (CDT)

hello my fellow travelers! just another sister hepper living life on life's terms. just recentely got fired due to hep c need your prayers. thanks
kimc
tupelo, ms USA - Tuesday, May 09, 2000 at 23:01:12 (CDT)

I am also + for Hepatitis C. I am a Health Care Provider. "Always maintain good health, nutrition, & exercise." Avoid; alcohol, street drugs, and any other liver toxic drugs.
Paul
Lake Havasu City, AZ USA - Tuesday, May 09, 2000 at 00:16:11 (CDT)

I am an RN with the virus
Sue
Ramsey, N.J. USA - Saturday, May 06, 2000 at 13:20:04 (CDT)

My name is Audrey and i am from Michigan. i found six months ago that I have Hep-C. I have gone through hell trying to find a doctor here in the Flint MI. area.I have finally found a doctor I like. I would like to know if any of females experience real bad pms. i go through hell. i get so i can not think or even communicate with people. i experience bloating bad cramps.my hips keep getting bigger. im really a mess during this time. im finding out alot my symptoms are from my illness. I havent started any treatments yet. I would like to hear a little more info on the side effects of interferon treatments. It is scaring me bad. Thank you for your response. May God Bless You All.
audrey
flint, mi USA - Friday, May 05, 2000 at 11:39:11 (CDT)

I was diagnosed with Hep C in 1996 while in the county jail, detoxing off of Heroin (amongst many other things). I ended up being on the inside for a little over a year. That was probably the biggest thing that saved my life. If they would've let me go- I'de be gone way before my time. I have been feeling like crap for the last year or two, down and tired. But, to those who feel your life is gone- don't give up hope. Look around you, look at the ski- the flowers the earth, look in the mirror and not think about what or why this disease came about- but remember the day's (even us together fighting this ) have. I did what I did years ago to myself, and I thank God Everyday that I did used the drugs I used-so as my children, and neices & nephews cannot hide it from me. So, I can help them if the crap passes their way.
Good luck to all who suffer this disease, May God bless you and keep you under his wing..
Brandy
Everson, WA USA - Friday, May 05, 2000 at 01:05:17 (CDT)

I am married to a man with hcv he was told in 92 he had this disease by the red cross in missoula montana,They said not to worry they couldnt use his blood even for him for a back surgery he needed, This disease was not dangerous he could follow up with a doctor but it wasnt necessary. I have read different stories and apparently lots of people are scared like we were in 97 when all of a sudden He started getting weak eyes yellowish tint and dark urine, It was very scary for me I cant imagine what my Husband must have felt. All of you tell people about this site and encourage them to help even though they may be well we need all the help and recogination we can get..God Bless all Nancy
Nancy
Morgan, Texas USA - Thursday, May 04, 2000 at 22:06:47 (CDT)

I just found out 3 weeks ago that my 20 year old cousin, Jason has Hepatitis C. The whole family is in a state of shock. I just wanted to say this website has been comforting..thanks
Nicole V
Eureka, MO USA - Thursday, May 04, 2000 at 14:52:40 (CDT)

I've just discovered this wonderful page. I didn't realize there were so may people with this disease. If we all stick together we can beat this thing.
anna
lenoir city, tn USA - Thursday, May 04, 2000 at 10:20:48 (CDT)

i am a 45 yr. old tattoo artist, i have found out i have hep.c...alongtime ago...18 yrs. i started tattooing and their were not any health reg. regarding this business and we did not know of sterilation and my ex-husband taught me and he has it and he was a herion user when he was young he is 55 now....i don't know where i got it, but i am scared to death...i feel fine....i want to try and fight...i love life and believe in miracles, if you can help me with any new information or refer me to any local physicians you are familiar with, let me know....i am going for my first visit after finding the blood results tomorrow....my sister is going with me for support....i have a loving family and friends if anyone out there has gone through therapy for this and it is good please give me some hope, for everyday i have to look for some....thanks, deborah
deborah
st. augustine, fla USA - Thursday, May 04, 2000 at 08:14:17 (CDT)

Have had hep C for almost 18 years. have just relapsed in the past few weeks and am feeling BAD. Would like everyone to know that there is going to be a Liver Walk in Rochester, NY on June 17th..Please e-mail me for more info.
Stacey
Dansville, NY USA - Wednesday, May 03, 2000 at 20:00:09 (CDT)

I am so glad to find a Hep C website that mentions God and actually means it. God Bless all the fellow heppers and their families. We are all in this fight together. I was diagnosed w/Hep C 8-11-99 and I have been on combo treatment since 11-2-99. Due for a viral load this month. Trusting in God that the results will be good : )
Irene
Rockwall, Texas USA - Tuesday, May 02, 2000 at 15:57:35 (CDT)

I just logged on and this is the best site ever! Thank you for being informative, up-to-date and not afraid to give God the credit where it's due. Have great "maintaining" methods.Just got a new liver panel for proof.God led me to what to eat,etc. and I'd love to share this enjoyable and fulfilling way to get great test results. I have Rheumatoid and am battling with that also, so any info would be appreciated. Grace and Mercy
laura
bath, nc USA - Monday, May 01, 2000 at 11:45:23 (CDT)

Hey there...How are you doing...Like the page changes...Where have all the hep c rooms gone...Love ya...
Am healthy here still no liver damage...Did the ultra sound thing...So much easier and stress free...Miss ya...Say hi to your wife for me...God Bless
Ruth
Grand Rapids, Mi USA - Monday, May 01, 2000 at 07:40:34 (CDT)

I just was diognosed with hepatitis-c recently. I was having a pysical done for employment and they did several test on the liver and found that there was a problem, this led me to seek other opinions. I`m waiting to see a specialist in this field. Hopefully I caught it soon enough to make a difference. I`m going to try to be in Washington D.C. on june 4 2000. it`s always nice to talk to someone who understands. The information that i have acssessed so far on this website has been very helpfull to me, Thanks.
Kevin
Riverside, Rhode Island USA - Friday, April 28, 2000 at 10:51:35 (CDT)

I have just started to learn about this disease on behalf of a friend of mine. I sure am getting a stark crash course. Thanks for the resources and this site's ease of use. Keep up the good work.
Shauna
Norwalk, CA USA
- Friday, April 28, 2000 at 10:16:09 (CDT)

Thanks for being here, sometimes knowing I'm not alone is a form of medication. To know that i've had this disease for so many years, and have so many more years to go before I witness a cure or death, and knowing that each day that passes brings me closer to either of these two events, causes me to wonder, which one shall i experience. Am i being greedy when i pray for more time to live, or am i being greedy when i pray to die so that i can forgo the odessy of each waking day full of fatigue.
JoeR
Spring Hill, FL USA - Friday, April 28, 2000 at 09:46:53 (CDT)

i am seeking info regarding unsuccessful treatment via interferon and ribovarin ombo
dan
dix hills, ny USA - Thursday, April 27, 2000 at 19:56:11 (CDT)

More a cry for help really - I'm a mild chronic hep C sufferer - about 9 years I think though possible 12, depending on where I was infected. I have been unable to find any sort of information or support group in New Zealand. It would be absolutely wonderful to have a site such as yours available. I learned so much tonight from your site and a lot of confort there. Even if you are unable to help, I congratulate you on what you are achieving and wish you all the best. Carry on with what you do well. Regards, Kate.
kate
Dunedin, Otago New Zealand - Thursday, April 27, 2000 at 03:35:09 (CDT)

After having the end stages of Hep-c along with Chirosis, My Care Giver, Dave and I went looking for a support group in the Flint MI area. Only to find out the closest one was in Detroit, 1&1/2 hours away. After contacting these great people at NHCC, They put us on the right track for us to start our own Hep-c group.
Its coming true. Anyone living in the vacinity or not is encouraged to contact me- Joe- at joey17065s@aol.com to find out more info. Our target date for the first meeting will be in the middle of June or the beginning of July 2000. If your interested in attending please write to the email address above. Many thanks to the crew at NHCC.
Joe
Flint , MI USA - Thursday, April 27, 2000 at 02:08:37 (CDT)

I just want to thank Patty & Kevin for their efforts and devotion, to us.. God BLess Them for All they do. We need more humanitarians like them, on this planet. They do this out of LOVE for YOU. What greater cause can there be? Amen! G.S.
Glenn S.
Wiggins, Colorado USA - Wednesday, April 26, 2000 at 21:41:22 (CDT)

Great page! We heppers appreciate it
Scott V
Tampa, FL USA
- Wednesday, April 26, 2000 at 21:11:49 (CDT)

I have been in "remission" since December of 1999.
donna
murfreesboro, tn USA - Tuesday, April 25, 2000 at 18:56:35 (CDT)

Have Hep C, presently being evaluated for transplant
Mary
Loogootee, IN USA - Tuesday, April 25, 2000 at 09:50:04 (CDT)

We just found out a couple days ago my husband has hepititis c.can he get ssi? what kind of diet should he be on? what are the side affects of the medications? we do not know anything about hepititis c, or how he got it.
Jacki
Milford, MA USA - Monday, April 24, 2000 at 22:43:56 (CDT)

Thanks for being there.
Brenda
SanPablo, Ca. USA - Monday, April 24, 2000 at 16:03:47 (CDT)

I am currently on tx and am in process of starting a support group in my area. Interested in info to share.
Melanie
banner elk, nc USA - Sunday, April 23, 2000 at 20:23:08 (CDT)

Hi All, Wondered why my life has been what it has been the last few years. Now I know. And because of the Coalition, I'm finding out many more things that I need to know. Thank you so very much for all your efforts and care. God bless you all.
Thomas
Erie, PA USA - Friday, April 21, 2000 at 22:17:27 (CDT)

All I want to say is that my husband was recently diagnosed with HCV ~ and so naturally we're incredibly new at this ~ and it's such a relief to know that support groups like yours exist ~ and for that we both thank you.
NANCY
Manville, Rhode Island USA - Friday, April 21, 2000 at 18:25:24 (CDT)

my husband and I have just been diagnosed with hcv
deb
nineveh , new york USA - Friday, April 21, 2000 at 08:14:24 (CDT)

I been living with Hep C for over 36 years. I have tried all available treatments medical and herbal. At the present time I'm on my second trip with Rebetron since my new doctor feels that I didn't go long enough on the first try. For those of you who don't know what Rebetron is; it is a combination drug therpy with the use of Ribavirin which is a capsule taken twice a day. The other drug is Interferon alfa-2b an injection i give myself three time a week. The side effects of the drugs in my opion is worst then the effects of the virus Hep C. My bigest problem is trying to make people understand what a person feels like with this treatment and the way insurance companies an our own Government feels about this virus. If it was not for my belief in God (Jesus Christ) I would be in a bad way. So if I have anything to say about Hep C to those who just starting to understand what we have and to those who do understand, seek God for the comfort and support you will need. Proverbs 3:5-8; "Trust in the Lord with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge Him, and He shall direct thy paths. Be not wise in thine own eyes: fear the Lord, and depart from evil. It shall be health to thy navel, and marrow to thy bones." May God Bless. Fred1boy1@cs.com
Fred
Sparks, NV USA - Friday, April 21, 2000 at 05:12:16 (CDT)

I've just been diagnosed with HCV and I'm still reeling from the news, actually -- I'm told it's in remission but by some accounts that can be deceieving news. I'm really frightened.
Michael B.
Gainesville, FL USA - Thursday, April 20, 2000 at 11:04:36 (CDT)

I have found out last November that I have HepC. Just searching the web for answers.
Vicki
Indiana USA - Thursday, April 20, 2000 at 10:17:22 (CDT)

Hi, I have just recently been diagnosed with HEP. I just am now recovering from my first liver biopsi. I am trying to find ways for us to get help getting our medication which havent started yet.I go to get the reselts of the biopisi 4-27 wish me luck.
Mary
Quincy, IL. USA - Thursday, April 20, 2000 at 01:59:49 (CDT)

Would like to become a member. Just recently diagnosed. I am a health care professional and fitness buff, eager to get all the info I can to help myself and others with this illness.
Pamela
Schenectady, NewYork USA - Wednesday, April 19, 2000 at 19:52:59 (CDT)

Thanks for the site. It helped me out. My dad has hep c and I am scared about how things are going to go.
Renee
Elyria, Ohio USA - Wednesday, April 19, 2000 at 16:30:10 (CDT)

Found out about hep C in 98 been in denial until March 2000 and now I know that I'm not alone Peace Out.
Joyce
Central Valley, CA USA - Wednesday, April 19, 2000 at 16:30:01 (CDT)

Just recently dianosed with HCV, this year. Scheduled to begin interferon and ribavirin in about two weeks. I am happy to see there are support groups and tons of information to go along with the treatment.
Tim
Kansas City , MO USA - Wednesday, April 19, 2000 at 11:35:59 (CDT)

I am happy to find this site. Iam looking for the information htat I can to make informed dicisions.
CHERYL
Port St. Lucie, flordia USA - Tuesday, April 18, 2000 at 16:23:52 (CDT)

recently diagnosed with Hep C (2/2000). just beginning my journey to search for info and help. contracted virus 10 to 25 years ago most likely. experiencing many of the common symptoms associated with Hep C for several years. glad there are sites like yours. feeling all alone. will be visiting you often. thank you.
linda
lynwood, ca USA - Tuesday, April 18, 2000 at 14:31:21 (CDT)

I think your sight well put together and helpful.
Richard
Hoffman Estates, IL USA - Tuesday, April 18, 2000 at 10:36:22 (CDT)

I am visiting your Website so as to gain some ideas and increase my information. I am a project worker working with people who have Medically Acquired HCV here in New South Wales. Any ideas in reaching these people more effectively? You see, this is a relatively new project and I believe in going to those who may know. Finally, I'd just like to say that your Website is wonderful and I hope to include your address in our next newsletter. Keep up the good work. Sheelagh
Sheelagh
Sydney, NSW Australia - Tuesday, April 18, 2000 at 07:08:48 (CDT)

I was first diagnosed in the 80's with non A non B the doctors didn't seem to know what it was. In the 90's they started calling it C and they still don't seem to know much about it. I did this to myself so I can blame no ones else. I'm 55 years old and have been alone for six years. I feel like a leper and think my life is over.
John
Seattle, WA USA - Monday, April 17, 2000 at 23:54:02 (CDT)

Seeking information for treatment and medical care for HCV if there is no health insurance. Desperate. Ann
Ann
San Diego, CA. USA - Monday, April 17, 2000 at 22:57:10 (CDT)

you have a very informative colunm, thanks. i've been living with this disease for 6 yrs. and it doesn't get any easier. i'm currently looking for work in the medical field from home. if you have any suggetions or ideas i would appreciate it,
anna
lenoir city, tn USA - Monday, April 17, 2000 at 21:25:51 (CDT)

Are hep c patients eligible for disability benefits or workers compensation?
Teresa
Newport News, Va USA - Monday, April 17, 2000 at 16:29:05 (CDT)

My best friend David who by the way is the source of my email address...has Hep C and I research it daily to find out as much as I can to help him. Your site is very informative and I hope to visit again soon! I am trying to keep him alive for as long as possible so that he does not become my real angel. I would miss him dearly! Thanks for posting this site!
Stacy
Montrose, Pa USA - Monday, April 17, 2000 at 15:09:04 (CDT)

I am a victim of Hep C and i really found a lot of information on this site. As a matter of fact, i think this site has kept my interest longer than any other! I was diagnosed with Hep C in September of 1997 and have been through all the usual treatments with drugs but to no avail. I have Cirhossis and was informed in 1997 that after my liver byopsy was completed that my liver was in the 55% damage range. I was also told my (wonderful) nurse practioner that i would probably die waiting for a liver transplant as they are very costly and i have no money! I say (wonderful) because i really mean this. I wanted honesty and i got honesty. We all have a right to life and a right to know about our life. I have a short but meaningful statement that i wrote and hang on the wall that goes like this... Our Soul is a process for which we were intended, dying is a part of life that brings us all together. God gave us life and god brings us heaven. Angels are a part of our past that will bring us our future and where there are angels there is life! God bless you and your wife and thanks for the web!
Nancy
PSL, FL USA - Friday, April 14, 2000 at 17:35:12 (CDT)

I am visiting your web site looking for help in dealing with hep C...Tks.
Howard
Chesterfield, MO USA - Friday, April 14, 2000 at 16:04:36 (CDT)

I went to the VA in Minneapolis Monday and got a good education. I have almost 2 million of them dirty buggers in me but they said that's not too bad. They took blood for CBC and a genotype study. I am scheduled for a liver biopsy within 2-4 weeks and 2 weeks after that I start the tratment. I also found out that the Vietnam Veteran(I'm one) population is at epidemic stage. We are infected 10 times as much as others. Thanks again for the memories. If you know a veteran from that area-inform the person to get checked for Hep c
Mike
Avon, Minnesota USA - Friday, April 14, 2000 at 10:39:31 (CDT)

I took an Hep C HCZ PCR test. the result was 124,000. Is this good, bad, indifferent. Please advise. Note I have had hep C for 13 years presently. Two years ago my biopsy came back that i had no scarring of the liver. Please advise. Also I am 5'4 and weight approximately 102. Is it ok to eat cheese etc. I have a high fat content - pizza, cheese.
Laurie
Studio City, CA USA - Thursday, April 13, 2000 at 13:42:21 (CDT)

8 years ago I was diagnosed with chronic hep C. I took interferon injections for approximately 5 1/2 months. My condition improved 100%. My condition has since worsened I have no medical insurance at all. My husband works for a temporary job service which does not have insurance and his paychecks just get us by. My question is if any of you know where I can get help to see a physician and back on treatment until I can get medical coverage I would be greatly appreciative for the information. Thank You for your help!
Bonnie
Alliance, ohio USA - Wednesday, April 12, 2000 at 14:32:44 (CDT)

Just found this website and couldn't be happier. I found out 2 years ago that I have Hep.C. I've tried to find information on the internet and just wasn't that much out there. This is fantastic!
Tracie
Lake Worth, Florida USA - Wednesday, April 12, 2000 at 14:21:13 (CDT)

I was recently diagnosed with hep C and I was devastated I've had nothing but tests and needles stuck in me including a biopsy last week. Im very worried if I will be able to deal with the interferon shots my doctor is probably going to recommend next thurs.
Tim
Pembroke Pines , FLA USA - Monday, April 10, 2000 at 19:05:31 (CDT)

I have just been diagnosed with hep-c and I don't have the symptoms associated with the virus.Hopefully treatment can reduce liver damage extent.Kevin's story has given me more hope,and with the faith in God I can help others also.
Robert
Lenoir, N.C. USA - Saturday, April 08, 2000 at 23:44:44 (CDT)

Thank you for your web site. Its beautifully done. See you at the support meeting on Tuesday in Murfreesboro. Peter
Peter
Mulberry, TN USA - Saturday, April 08, 2000 at 18:57:48 (CDT)

My husband became infected through a blood transfusion 12 years ago, my federal government seems to be indifferent to the pain of heppers or to our deaths. Is it just me or are the people we entrust our safety and well-being too, acting as though we are just limitless cattle to be herded and if a few should perish due to adverse conditions then so be it.
Mrs. M.
Qualicum Beach, British Columbia Canada - Saturday, April 08, 2000 at 02:00:28 (CDT)

I would be interested in chatting with people in my area that have Hep C
sharon
loon lake, Washington USA - Thursday, April 06, 2000 at 23:41:30 (CDT)

wellest done
nick
Qualicum Bay, B.C. canada - Thursday, April 06, 2000 at 18:12:35 (CDT)

I have been diagnosed since 1989. My husband was diagnosed last week. Thnak God our 5 year old daughter is negative. We need all of the information and suppport we ccan get. Please send me email, newsletter sor any nfo you can. Thank you.
Lorraine
West Palm Beach, Florida USA - Wednesday, April 05, 2000 at 09:56:12 (CDT)

Hello, I'm writing from just north of you here from the most southern tip of our West Coast. It is good to make
contact with our southern neighbor. Although we have an agency in Canada; additional input is always worth sharing.
Don
Victoria, B.C. Canada - Wednesday, April 05, 2000 at 08:06:01 (CDT)

I have had Hep C that I have been aware of for 3 years, after 2 years of intensive alternative work for my liver wich cost over $2,000 a month and lots of acupunture my liver enzimes were at a normal reading, I made a move to Az. to be closer to my kids, could not aford the alternitive treatments, and I have gone down hill again. I have used interferone in the past and got very sick and depressed after 2 months of use. so if there is a mailing list about updates on new herbs or vitamin's please let me no.
James
Mesa, Arizona USA - Tuesday, April 04, 2000 at 20:38:12 (CDT)

Thanks for support and help, and for valuable informations. Wish you very, very best in your furder work and life. Ones again tanks! Yours friend Dunja
Dunja
Split, Croatia - Tuesday, April 04, 2000 at 15:25:36 (CDT)

Great site, still haven't finished going through it.
Luis
USA - Tuesday, April 04, 2000 at 14:27:10 (CDT)

Thank you for all the info I was able to get from your site. I was diagnosed with hcv in 1997 Now my goal is to inform as many people as possible about this silent killer my web page is just a start It has a very long way to go God Bless all of you
DaddyDago aka Freddie
Venice, California USA - Tuesday, April 04, 2000 at 11:35:14 (CDT)

Hello, I have Hepatitis C and it would be nice to have someone to talk to that is going through the same thing I am.
Jennifer
Woodstock, va USA - Tuesday, April 04, 2000 at 09:38:48 (CDT)

Hello. Danette and I have just found out that she has hepatitis C and are looking everywhere for anything we can find about the subject. Danette just returned from the Dr. and he says she must take the interferon, three times a day by injection, or something like that. We are just wondering what kind of results we might expect and any alternatives to this drug. From what we've read, it is really nasty. Thanks
Frank and Danette
Chandler, Arizona USA - Monday, April 03, 2000 at 20:56:02 (CDT)

Thanks for setting this up.. It's good to have as many sources of information as possible.
Tracy
Albany, Oregon USA - Monday, April 03, 2000 at 15:57:27 (CDT)

good going
michael
kingston, ny usa - Sunday, April 02, 2000 at 21:55:20 (CDT)

I've had a liver transplant thanks to the wonderful folks at Vanderbilt and a donor family. There is hope, keep trying. I've felt much better since the Xplant. I would have died April-May 1998 without it.
Ken
Hsv, AL USA - Sunday, April 02, 2000 at 20:22:11 (CDT)

This is the best thing that could be out there for us. US!
Keith
Phoenix, AZ USA - Sunday, April 02, 2000 at 18:10:14 (CDT)

Nice to see some support for hepatitis sufferers, I would love to receive the newsletter that you do, however i can find no place to subscribe. Keep up the good work. I have Hep C and have just recently had my second biopsy done, haven't gotten the results back yet well nice to find ya.
Ted
Ayer, Ma USA - Sunday, April 02, 2000 at 08:59:24 (CDT)

would like to talk or speak about my experience
Tamra
pekin, in USA - Friday, March 31, 2000 at 22:36:34 (CST)

Thanks, Kev for the information you gave me. My prayers are with you and your family. Thank you for having a website on this terrible disease. You care more than my doctor does in answering my questions. God Bless you.
Liane
Colorado Springs, CO USA - Friday, March 31, 2000 at 20:27:45 (CST)

starting treatment soon and need support
coriana
beacon, ny USA - Thursday, March 30, 2000 at 20:58:33 (CST)

Thanks for having another site on HCV. I'm diagnosed with HCV in 1997 and been through a first 3 months treatment with a daily 6 milj. IE Interferon and 1 Ribavirine, which didn't have any results and since 1 week i'm busy with another Trial consisting of the first 2 weeks 3x (every 8 hours) a day 6 milj. IE Interferon and 2x 3 tablets of Ribavirine and 1X a day (Mornings) 1 tablet of Amantadine.The total time of the treatment is 6 months. So far I can not sense no side effects and feeling good but taking my rest where possible. If your interested I can update you as it devellopes..
Glenn
Amsterdam, N-Holland Netherlands - Thursday, March 30, 2000 at 16:13:00 (CST)

Michele
Payson, UT USA - Thursday, March 30, 2000 at 15:48:56 (CST)

Great site. We,re not lazy and crazy. We just have Hepatitis C.
Holly
wa. USA - Thursday, March 30, 2000 at 10:50:03 (CST)

My husband has been recently diagnosed with hep C. I was searching everywhere for information on this disease. I ran upon this site when searching. I have to say that this site has provided me with more information than I have been able to find anywhere. I want to thank you and thank God for people like you who help spread the word.
Ginger
Clarksville, TN USA - Thursday, March 30, 2000 at 09:46:25 (CST)

I was diagnosed Aug 1995 after I tried to donate blood. I got it from a tattoo needle. ALast year I heard that the guy how gave me the tat now has HCV himself.
Debbie
Pocomoke, MD USA - Wednesday, March 29, 2000 at 22:42:59 (CST)

Hep C cure needed
James
Goose Creek, SC USA - Wednesday, March 29, 2000 at 21:39:46 (CST)

I would like information about hep c for the OKDHS annual health and safety conference to be held 6/1/00.
Shirley
Pauls Valley, Oklahoma USA - Wednesday, March 29, 2000 at 15:16:56 (CST)

Got hepc in 1985 in a burn center. The more I read the less I know
Dave
Macon, Illinois USA - Tuesday, March 28, 2000 at 18:47:49 (CST)

Thanks for your support & encouragement.
Steve
Boring, OR USA - Tuesday, March 28, 2000 at 11:35:21 (CST)

i have been diagnosised with hep-c since november. I have no info on it and would like to know the different stages people go through and the symptoms. I have no one to talk to about this. thanks.
cecile
calhoun, ga USA - Tuesday, March 28, 2000 at 08:41:24 (CST)

I have Heptatits C
KAren
Marietta, Ohio USA - Tuesday, March 28, 2000 at 01:24:55 (CST)

I'm 48 with stage 2 hep c. I've been on Interferon and Ribavirin for 2 months. I hope it works!
Kenny
Modesto, Calif. USA - Monday, March 27, 2000 at 18:08:53 (CST)

Hell-o,
God bless all of you!! I contracted HCv though a blood tranfusion in 1986. I've had treatment and it did'nt help. Now, I have a healthy life regiment, and I really believe that alcohol will help the dragon slay. PLEASE DONT DRINK ALCOHOLIC BEVERAGES!!! KEEP POSITIVE !!! e-mail me and let me hear from you.
shirley
clarksville, tn USA - Monday, March 27, 2000 at 13:54:08 (CST)

I am looking for anyone out there with information on fibrosis stage 2, I was just diagnosed with fibrosis in stage 2 and need more information on it. I appreciate any information that anyone has. Please e-mail me at anytime. Thank you
kimberly
USA - Monday, March 27, 2000 at 00:16:51 (CST)

I enjoyed your site. We are the Hepatitis C Foundation of Quebec, newly founded in 1999 to support those infected or affected by HCV virus.
Eileen
Verdun, Quebec Canada - Sunday, March 26, 2000 at 12:14:04 (CST)

I really your site, it has been very helpful to me. I am also infected with the Hep C virus. I am scared to try the interferon but hope they Heard about the Peg drug and might be better, but it is not out yet. So I will Keep on researching and hope I can find a treatment. Rosita
Rosita
Ketchikan, Alaska USA - Sunday, March 26, 2000 at 05:32:09 (CST)

i`m new to internet and your web site and i hope to get some useful info so i can kick the hell out of this disease,thank you.
tom
sicklerville, nj USA - Saturday, March 25, 2000 at 19:01:00 (CST)

Good wishes to all fellow heppers out there! I found out about 4yrs ago I was hep c positive.Although a vegetarian for about 20 yrs I have a bit of a wild side I'm trying to tame.Living a healthy life, thinking good thoughts, and beleiving in a higher power helps me keep going.I beleive this can be beat, or at least lived with!
Angelo
Inglewood, CA. USA - Saturday, March 25, 2000 at 15:26:19 (CST)

I'm suffering from HCV and appreciate your web site. I wish people like doctors and SSA would stand-up and accept HCV as a real diease that causes many symptoms like fatigue and muscle aches. I'm entering stage 4 of the diease and doctors say that I shouldn't be having any symptoms. Fatigue and muscle aches are real for HCV victims. Thanks for your web site.
james
morgan hill, ca USA - Friday, March 24, 2000 at 21:26:16 (CST)

My mother suffers from hepatitis C. She has now developed cirrhosis. The doctor has told us this is the beginning stages but she is very sick. Is there any information about cirrhosis. How does it go from nothing to end-stage??
Maureen
Hollywood, Fl USA - Friday, March 24, 2000 at 12:17:13 (CST)

Hi! My name is Kim and I am 43 years old and been living with hepatitis C for the last 8 years. I just recently had a liver biopsy and I now have chronic active hepatitis c with fibrosis and inflammation and was told that I am in stage 2 of fibrosis. I am really scared now more than before I guess I really never wanted to come to reality that I do have a very bad liver. I think that my doctor will put me on treatments, I have an appointment with him on April the 14th of 2000. I have a lot of other medical conditions, that I hope won't interfere with the treatments, I have asthma and a pacemaker and have a hypothroid. I really need some support. I hope that you can help or find someone for me who can. Thanking you.
kim
westwego, La. USA - Thursday, March 23, 2000 at 22:07:17 (CST)

I would like to talk to people with hep C .I found I had it about 1&1/2 years ago.I am looking for answers.
jim s
lucerne, Calif USA - Thursday, March 23, 2000 at 19:58:54 (CST)

Really great site. Thanks! I was diagnosed nearly a year ago when I haemorrhaged from esophogeal varices. I would love to contact anyone else who has been through this and anyone with cirrhosis caused by HCV. I have been on interferon for about 8 months now. Does anyone else get mood swings from it? I'm doing all sorts of alternative stuff too - Chinese herbal medicine has had good results with HCV. I wish everyone the very best of luck in fighting this horrible virus. Take the very best care of yourselves. Ruth.
Ruth
Napier, New Zealand - Thursday, March 23, 2000 at 16:53:04 (CST)

hey everynoe,my name is sara, and i am in the 7th grade doing a BIG project on hepatitis C. I have not been diagnosed with it, nor do I know any one personally with it. If anyone would like to email me with information of thoughts on this, then I would truly appreciate it! Good luck to all of you! ~sara~
sara
fairbanks, alaska USA - Wednesday, March 22, 2000 at 20:09:42 (CST)

Well, I am at week 24 of treatment and I am ready to take the blood test to see if the virus is non-detect....crossing my fingers....if still detectable my doctor says he has another treatment plan...I think its encouraging, but a vaccine would be better. Wish I felt good....have felt so lousy for so long...Still hanging in at work....some days harder than others...
Linda
Rockville, MD USA - Wednesday, March 22, 2000 at 11:17:09 (CST)

My wife and I both have hep C. We are & have been thru the combo therapy. Looking for other info on hep C.
Mark
El Paso, TX USA - Wednesday, March 22, 2000 at 10:47:26 (CST)

I have hepatitis A B,C and I don't take any meds. Should I?
Christine
Fort Bragg, NC USA - Wednesday, March 22, 2000 at 06:06:05 (CST)

Need help to get Disability from Social Security.
Fred
Sparks, Nevada USA - Tuesday, March 21, 2000 at 21:47:50 (CST)

My sister was diagnosed with hep c about 6 months ago, she worked in health care (dialysis) had liver biopsy and it came back fulminent. We could use some advice about diet and close support group in our area. thank you
carol
burbank, ca USA - Monday, March 20, 2000 at 18:59:56 (CST)

I have been diagnosed by the VA Medical Center in St.Cloud, MN as being positive for HCV. The VA first informed me that I carry the anti-body in 1982. Unfortunately they didn't tell me anything other than don't give blood here anymore. I am a disabled Vietnam Vet(69-70-71) and a veteran of Korea(1974-75). My count is almost 2million copies and I am about to start the treatment program for HCV. All I ask is "what now?"
Michael
Avon, Mn USA - Monday, March 20, 2000 at 12:47:42 (CST)

hi,my names tim.i'm a 39yr.old man who's raising 2 kid's 12&11,by myself.i'm not sure where to start? on 6/17/93 i put myself in a hospital in alaska to stop drinking(bad drunk for 19 yrs.)while in treatment i was given blood test.i was later told in a very casual way i was found to have hepatitis positive test result's.no mention was made of hep.c and because i had had hep.a exposure in 91 and was told i could never give blood,that that was they're reason for mentioning the results,it was never mentioned again.i finished the 28 day prgrm. and have'nt drank since.whoopie! 11 month's ago i started losing weight,not sleeping,having lower back & abdominal pain's,no appetite,itchiness,lichen planus & spider nevi,just to name afew.believe it or not i have'nt seen a doctor yet to confirm this self diagnosis.i have been using the fact that i have no insurance coverage on myself as a reason for delaying,(once i find a job with insurance i'll go in.etc..)but i'm feeling worse & growing more afraid for my kid's.i just got a computer and mastered the net and fell into your sight by punching up hep.c. reading your guest book has given me motivation to quit hiding from the seriousness of my condition,thank you.i will be in touch in the future and welcome email.
tim
castlerock, wa. USA - Monday, March 20, 2000 at 05:42:44 (CST)

Found out in 1986 I had hep C now on treatment. See you all at the rally.
Terry
seattle, wa USA - Monday, March 20, 2000 at 01:33:13 (CST)

family concerns!
rohanna
felton, ca USA - Monday, March 20, 2000 at 00:33:03 (CST)

hello, i have advanced hcv,iv'e had it for about 8 years,i'm in recovery,taking it one day at a time. there was a time when i thought i didn't have much time left it was so bad,but by the grace of god i've improved alot,and i would just like to say that it's great to have the support that they have now and i pray that it gets better! thank all.
alex
tacoma, wa. USA - Monday, March 20, 2000 at 00:20:56 (CST)

My husband, Jim, is 51 and has active chronic HCV. He is taking treatment for the second time. The first time he took it for 7 months, was clear but the virus came back though not as strong. Anyway, his doctor has him back on the treatment, same dosage, and this time wants him to take it for a minimum of one year, up to eighteen months. The side effects are truly awful, and he is now off work on disability. Sometimes he wants to give up and I don't blame him, then he is immensely courageous and keeps on keeping on. I don't think I could if I were him. He is a Vietnam era veteran and believes it was the mass innoculations that exposed him to the virus. Needless to say, following decades of no symptoms there is no way to correlate between the two events. Anyway, I would like to be involved with your organization to keep current with emerging treatments, family going through the same experience as myself, basically wanting to be proactive.
Eileen
Lucerne Valley, California USA - Sunday, March 19, 2000 at 16:37:48 (CST)

CALLING ALL Hep C positive HEALTH CARE WORKERS.... especially those without known exposure incident. Need help convincing Workman's Comp that I am indeed serious. I don't care where you live, whether you work(ed) with the living, the dead, or the inanimate. Nurses, firemen, EMTs, techs, death investigators, autopsy techs, deaners, CMAs, RTs, even Law Enforcement. Let's go, time's a fleeting....
Laura
Dallas, Texas USA - Sunday, March 19, 2000 at 02:15:38 (CST)

Hi I was diagnosed about 3 weeks ago and I have alot of questions
Becky
Winchester, Va USA - Saturday, March 18, 2000 at 23:41:20 (CST)

I have just been diagnosed as having Chronic Hep C and I would like to be able to talk to other people who are also infected.
Mary
Auburn, WA USA - Saturday, March 18, 2000 at 20:56:50 (CST)

hi may name is al pechan I live in Nashivlle TN. I'm looking to find some local support groups in Nashville and the surrounding area. I've begun the combo therapy and would be beneficial for me to find people in my same situation. Any information would be greatly appreciated.
albert
nashville, tn USA - Saturday, March 18, 2000 at 15:53:17 (CST)

I was reading some of the messages in the guest book keep your faith pray a lot because when i was diagnosed with this disease my count was 17,000,000 the doctor said i might not get well but through the Grace of God and prayers they cant find this virus now i took nearly 2 years of treatment with shots and pills first with just shots in 6 months i will be reevaluated to see if its really out of my system.it hid once before i had to do a lot of praying to go through the shots and pills but it seemed to work this time will keep you informed when blood work comes back in 6 months may God bless each and every one of you pray to God alot tnd trust in Him. Floyd
Floyd
Morgan , Texas USA
- Friday, March 17, 2000 at 22:33:36 (CST)

Hi, a few weeks ago I posted a message about my husband and his case of Hep C...We got the results back from his last test and the Doc said his Liver Function Tests are Normal and that the Hep C RNA is Nondetectable!!! Is that result as good as it sounds? I am not really clear on what that means as far as his health is concerned. Thank you for your concern and care...Dee
Dee
Montgomery, Al USA - Friday, March 17, 2000 at 17:27:10 (CST)

I (we) are a group of one of many. DID/MPD and Bipolar (manic depressive)are our Mental Disorders. After a life time of existing with these and fighting them each day of our life(s) we ended up with HCV. Diagnosed in 1994 and as far as can be tracked down to getting it in 1985 from a blood trasfusion. um.. dunno what to say without writing a BIO... HA! Anyway, heads up and fight for you, no one else can luck, light and love to all
John ( I Plural the gang )
St Pete, Florida USA - Thursday, March 16, 2000 at 00:28:55 (CST)

Need local support group meetings
MARY
Phila., Pa. USA - Wednesday, March 15, 2000 at 12:10:22 (CST)

FANTASTIC SITE!!!! After kissing so many frogs I've FINALLY found my prince. As he turned 40 I pushed him towards his doctor for that check-up, not to mention he had some lower back pains. Guess what we found, yep, Hep C. He knows that he contracted it when he was 15 or so, that would mean he would have had it for 25 years. His doctor told him his levels are very high and is setting an appointment for a specialist. Well I'm so scared, terrified of loosing my prince, I would like someone to talk to who can answer some of my questions. I don't want him to know how scared I am for I feel that he needs my support. Once again, thank you so much for the site and God Bless.
kimberley
Surrey, BC CANADA - Tuesday, March 14, 2000 at 16:23:19 (CST)

Need Treatment Info.
Terry
Pgh., Pa USA - Tuesday, March 14, 2000 at 12:48:02 (CST)

I am an Australian working in the US for two years and I have a brother in Australia who contracted Hep C when incorrectly diagnosed with Hemophilia. I am trying to find out as much as I can about the most recent treatments available in the USA.
Rod
Coronado, CA USA - Monday, March 13, 2000 at 23:46:07 (CST)

Hello, I was diagnosed 12 years ago as being a "hepatitis c carrier" That was how my Dr. described it. He made me believe that it was nothing so I have not seen a Dr. since that time about it. Boy was that a mistake. I am now
experiencing many symptoms of active hep c and am just now learning what this could mean to me. I am 39 years old and am a minister. I know that I can get through this but I must admit there are sure some fears. I see a specialist on March 16th to see what he will recommend. Thanks for your site. I need information and found some here. God bless, Kevin Bayless
Kevin
Cameron, MO USA - Monday, March 13, 2000 at 15:27:51 (CST)

Just passing through, great site....I'll be back. Best wishes, Donna
Donna
Boston, MA, MA USA - Monday, March 13, 2000 at 07:00:22 (CST)

Fighting the Dragon since 1997, Tried Interferon,couldnt handle it. waiting for something else
Bill
Republic, Mo. USA - Sunday, March 12, 2000 at 19:07:28 (CST)

I have hep c and would like to be on your mailing list. Thanks
Sherry
Lexington, Ky USA - Friday, March 10, 2000 at 11:07:05 (CST)

I too suffer from this illness; I hope they find a cure. I read Kev's story. I can relate to it. I was active duty Air Force when my symtoms started, yet the Air Force never detected my Hep C; even though at one point my ALT readings were real high. I found out while attempting to get life insurance. I'm on the combo and responding, my geno type is 1 little b. God Bless.
Jimmy
Vincent, AL USA - Thursday, March 09, 2000 at 00:04:21 (CST)

hi i would like the latest information on hepatitis c on a steady bacecs please.
frank
taber, alberta canada - Wednesday, March 08, 2000 at 23:33:34 (CST)

Hello found out 6 months ago.Old life style from 70,s came back to haunt me and mine.Useing vitamins and herbs:E,C,alpha lipoic acid ,lecithin, thymus, milk thistle,gikgo baloba,and a new herb I found out about Olive Leaf Extract(d-Lenolate)which is suposed to cleanse the body of all types of pathogens.This allows the immune system to cure the body of most sicknes.I,m trying these because I don,t want to do the Interferon&ribo.treatments if I don,t have to.I,m trusting in GOD and JESUS for healing and will be rechecked in a few months to confirm the progress.Thanks and God bless us all.
Terry
murfreesboro, tennessee USA - Wednesday, March 08, 2000 at 21:43:49 (CST)

Looking for information on hep c
Deb
Flint , MI USA - Wednesday, March 08, 2000 at 18:11:11 (CST)

Yes, I too have HCV and need to talk with others who have it also since there are NO support groups in my town.
De
Enid, OK USA - Wednesday, March 08, 2000 at 14:05:28 (CST)

I am a Hepper, and I just need to talk to people like me. I am grateful to you people who care.
Annie
Solon, Iowa USA - Wednesday, March 08, 2000 at 09:34:53 (CST)

i am a retired health adm, attempting to get info and counsel the daughter of my father's 2nd wife...i imagine as
she is computer literate, she is already a member...but i need to inform myself as well to assist her mother and my father in understanding the risks, the treatment, etc.
devra
los angeles, ca USA - Tuesday, March 07, 2000 at 18:13:47 (CST)

I took interferon alpha 2b in '96 and I relapsed. I'm doing better and taking Milk Thistle and vitamins. I tried your advice on LIVERITE (they sell it at SuperSave Drugs) and I have to say it seems to make me feel better. I also started the Cat's Claw and find it good as well, gives me more energy and makes me feel better. I take 500mg vitamin C, Liverite, Milk Thistle, Cats Claw, vitamin E and drink all kinds of water. I do pretty well. I have some arthritis in my neck and shoulders that I can't shake. Some kind of myalgia from the Interferon, I think. Anyway, I'm waiting for another treatment. Interferon sucked. they say if I take it again it will kill the virus. the treatment is worse than the disease. Nice web page, I used your advice on the Liverite and Cat's Claw and I'm a believer. I tried Ginko Biloba and Kava Kava and both bothered (hurt, panged) my liver. I felt really good for about a week and had all kinds of energy. Then I "ran into the wall". I pooped out and felt like crap until I quit taking them. I take these one at a time, without other drugs or herbs, so I can evaluate them by themselves. Good luck and good health.
steve
Pocatello, Idaho USA - Tuesday, March 07, 2000 at 16:36:01 (CST)

I am in the Army. I was diagnosted with Hep C in 1991. Do you know whether it is possible to contract Hep C from a Gamagobulin shot (Not sure about the spelling)? That short is made from blood products isn't it? I have looked at the CDC's web page and they do not mention that shot as a possible contributor to the Hep C infection. In the military we get alot of shots and before Desert Storm kicked off, I remember getting that shot. Right now they are treating me with Interferon and Ribivarin and I am not sure if I should try to take anything else. What do you think?
Michael
Fort Rucker, Alabama USA - Tuesday, March 07, 2000 at 13:32:21 (CST)

I have had hep C for 20 yrs. Have been off & on interferon.
GWEN
DELAND, FLORIDA USA - Tuesday, March 07, 2000 at 09:10:31 (CST)

This site is a very needed and wanted educational tool for both Hepatitis C patients and anyone else.
S. T.
Bethel Island, California USA - Tuesday, March 07, 2000 at 03:30:06 (CST)

i was in on the early clinical trials of combo thearpy in los angeles about 21/2 years ago after two unsucessful rounds on interon. my virus load was in the millions and after about 3 mos. of combo it was almost nil.i've been virus free ever since. i think my new found faith in god and a positive attitude helped alot.so hang in there and trust in god,it worked for me...:)
john
bishop, ca. USA - Monday, March 06, 2000 at 19:23:12 (CST)

Yes, I am only 13 Years old, and I'm doing research for a assignment..And my little nephew that is just bareley 2 months old, got diagnosed with Jaundice, a Kind of Hepatitis B...and he had to have sugery on his liver...And he is still in the woods, please say a prayers for the little guy...His name is Caleb...If you do send a prayer God will bless your heart..Thank you very much. I personally thank you alot.
Kyle
Portland, Oregon USA - Sunday, March 05, 2000 at 22:40:21 (CST)

i have hep c im hoping the combo theripy will work i get very deppressed bad flu like symptoms it makes me feel good knowing that theres people to relate to.
steven
brockton , ma plymouth - Saturday, March 04, 2000 at 18:09:31 (CST)

Great work on this web site. I have recently learned about Hep-C and awaiting my biopsy results. All this information provides for many thought provoking questions for the doc. It is great to see so much information on this very silent and relatively unknown disease. It is very scary how this can be transmitted and I appreciate all that has been provided by so many that are affected and care for others. May God Be With Each and Every One of You and May Your Journey Be Truly Successful.
DJans
Laguna Niguel, Ca USA - Saturday, March 04, 2000 at 00:13:11 (CST)

I was diganosed about 3 years ago. I have been thru 2 therapies of Interferon and a third of the combo but with no sucess yet. I am keeping my head up and hoping for another alternative soon. i am 43 years old and want to thank you for the site and info.
Mike
Joplin, MO USA - Friday, March 03, 2000 at 21:17:34 (CST)

Newbie and scared. I found out today, but haven't had in-depth testing yet. Say prayers, please.
Donovan
Austin, TX USA - Friday, March 03, 2000 at 14:18:16 (CST)

I'm a public health specialist, working for USAF here at Incirlik AF Base.
Edip
Adana, Turkey - Friday, March 03, 2000 at 05:47:23 (CST)

My husband has Hepatitis C and while it is not severe enought to require treatment, it is great to see a website devoted to the ongoing fight against Hepatitis and support for people with it. Thank You.
Dee
Montgomery, Al USA - Wednesday, March 01, 2000 at 21:21:41 (CST)

I was diagnosed with Hep C in 1997. I took interferon for 9 months. I now have to repeat the treatment again, interferon and ribovarin.
Patricia
Bear , DE USA - Wednesday, March 01, 2000 at 19:46:40 (CST)

Waiting to hear from someone else with Hep C. I need someone who just understands.
magge
W. Warwick, RI USA - Wednesday, March 01, 2000 at 16:08:24 (CST)

great work i sure needed the info i found here and the support
kimc
new albany, ms USA - Wednesday, March 01, 2000 at 11:56:40 (CST)

I am interested on any information you have on veterans acquiring Hepatitis C
Mary Ann
Jamestown, NY USA - Wednesday, March 01, 2000 at 10:31:36 (CST)

By the way, a lot of our members have had enormous success with a Native American herbal tea called Essiac, available at any health food store. It is a powerful immune system booster. At first I was very skeptical, but not even I can deny the results that I have seen. In fact, one of our members took it for over a year while waiting for a transplant. Afterwards, his immune system was so strong that the doctors were afraid that his body would reject his new liver! It may not work for everyone but it is worth a try. There are also books out on it. Finally, when the going gets tough, hang in there and keep the faith. Trust God. Turn to Him. Call a friend. Punch a pillow. But never never give up! Three of us have gone thru combo, and we made it, and so can you! I will keep you all in my prayers. Believe in yourself and your strengths and you will make it! Celebrate your victories, no matter how small, and remember there are friends all around you who care. But your best friend is God. Lean on Him and you'll be fine!
Patty W
Humboldt , CA USA - Tuesday, February 29, 2000 at 23:26:18 (CST)

Hello people! I'm 27-year-old girl.Got the virus in 1995.I was a drug addict before that.Virus changed me completely.Trying to get a life since then.I am happy.And not.Scared.Hopefull.Been through therapy.I think taking care of your body&mind helps much more than chemical therapy.Please contact me, if you feel alike.Love you all!
ooya
Maribor, Slovenia - Tuesday, February 29, 2000 at 18:13:02 (CST)

Was told in 1992 I had the Hep C antibody after I tried to donate blood. Went to my doctor, he confirmed. Siad a liver biop could be done, but since I had no symptoms, just keep an eye on my liver enzymes. I never really gave it much thought, but I told subsequest doctors after we moved about the antibodies. From a routine physical with a new doctor in Dec, at her suggestion I got a referral to a gastrointerologist and a subsequent biopsy. He is suggesting what sounds like the combo treatment referred to by so many of you chatting on this site. I am very scared about what will happen with my job. I am 54 and just 2 years from retirement. I probably got this from a transfusion in 1965 after my son was born. My hubby was tested in 92, neg. However, I think he needs to be tested again. Also my dau born in 67. Thank you so much. I have learned so much from your site and Kevin's regimen.
Judy
Phoenix, AZ USA - Tuesday, February 29, 2000 at 01:14:20 (CST)

I was surfing for info on Hep C becuase my neighbor across the street just passed away 2 days ago from. It was sudden and I was so surprised. Thanks for a great web page.
Dorothy
Spring, TX USA - Sunday, February 27, 2000 at 22:26:27 (CST)

this site will help millions, thanks alot.god bless.
Richard
bennettsville, south carolina USA - Sunday, February 27, 2000 at 22:16:49 (CST)

Found out I was hcv+ in 91, only now starting to worry about it. Looking for info found this site so thought I would say hello.
tom
nyc, ny USA - Sunday, February 27, 2000 at 17:00:25 (CST)

I found out in Dec. 98 I had the virus, have taken the pill shot therapy and the doc says the virus is gone, but am now taking the therapy a second time to make sure and also because my liver has scarring. any way I never knew about HCV and was quite devastated when I found out, I don't know how I contacted it tho, in my college drinking days I did self tattooing, but I had twins in 1984 and had transfusions but to tell the truth I was more scared of AIDS when I heard about how deadly that could be, but liver disease and all those illnesses associated with it is not a bowl of cherries either. funny tho, how one person can create awareness by finding out they have a particular illness, I like to think that that's one good thing that came out of this is I've got to talk to people in my community how trying to live healthly lifestyles. keep on keeping on,
hope to meet you all in Washington this year......
Martha
Sisseton, SD USA - Sunday, February 27, 2000 at 16:17:28 (CST)

I havent been here in 6 mo got my puty fixed cant figure out how to post on board ive tried an tried its all different now just got off 6mo on interferon was a non responder im awaiting a new combo now called peg know anything about it was sick the whole time on interferon would not have made it without Kevs regime
Celeste
Gridley, Calif. USA - Sunday, February 27, 2000 at 07:19:54 (CST)

Excellent website and I have saved it. Does anyone if the Hep C Virus can be given to another person through sexual intercourse?
Sincerely, Bill
Bill
Arlington, ma USA - Saturday, February 26, 2000 at 21:19:01 (CST)

I am a 46 year old female currently undergoing Rebetron Combo treatment for Hep C which I'm told I've probably had for 15 years or more. The side effects are almost unbearable. I've lost my job and I am single. Depression is a big problem along with severe fatigue, fever, chills, nausea, unbelievable headaches, swelling, itching, etc. I could whine forever. No one seems to understand - not the doctors -- not even some of my "friends" who've quit coming around. I've been a professional woman in a corporate executive position for many years and I never expected to be applying for social security benefits at this age. I don't even know if I will get social security approved or not. If not, I don't know what I will do. I certainly can't work in this condition. I don't know how I'm going to keep payting for treatment. I worry about my son, who is 19 and what will happen to him... I worry about everything.
Jonnie
Conway, AR USA - Saturday, February 26, 2000 at 00:06:07 (CST)

please send me any new information on treatment of HCV, and any other helpful information.
jimmy
santa ana, ca USA - Friday, February 25, 2000 at 14:37:55 (CST)

Diagnosed in Dec 99 with HCV. Start treatment in April. Good to know this site exists.
Donald
Holly Springs, NC USA - Wednesday, February 23, 2000 at 21:33:17 (CST)

I have Hept C. My doctor said I have had it for about 18 years. I am 37 years old. I was on the interferon for a year and in April 1999 was in remission. I was still on treat by Sept. 1999 it was coming back. I start treatment again in January 2000, combo. I was taken off the treatment two weeks ago because it diplead my bone mano, any my blood count. I thought I was going to die, I was so weak. I don't know what to do. I feel so all alone.
Janene
Kansas City, MO USA - Tuesday, February 22, 2000 at 19:32:36 (CST)

On 5th month Combo, so far non responder. Geno type 1a with inflamation on biopsy.
WENDY
ISLAND LAKE, IL USA - Monday, February 21, 2000 at 20:23:49 (CST)

I have been HCV positive since 1990,But did'nt believe it until a 1999 biopy at age 44, and I have mild liver inflamation,no change since 90.I'll taken intro-A & infergen,which made me feel sick all the time & did nothing for my HVC,so the Doc took me off of it,I'm a fireman & into karate & work out all the time,If anything is killing me it's the meds!I have faith in my Doctor,(dr.paul gaglio),He said We'll try again in 6 weeks,with an experimental drug(oh boy can't wait!)I,ll keep you posted,Pray for me!!!
AMOS G.
New Orleans, La.. USA - Monday, February 21, 2000 at 08:27:03 (CST)

Thanks for the info!
amos g.
new orleans, La. USA - Sunday, February 20, 2000 at 23:25:44 (CST)

My mother was diagnosed with Hepatitis C in July of last year. She died 7 months later. I really hope someone finds a cure for this terrible virus. Sincerely, Jennifer Preston, TX
Jennifer
Austin, TX US - Sunday, February 20, 2000 at 22:11:13 (CST)

I have hep-C and got my liverbiopsy results this week:mild to active hep-C , stage 2 or 3 (portal to portal) going to get second oponion not too keen on interfuron, and going to look to Chinise Med. I will be back to your web sight soon!
David
New York City, New York USA - Sunday, February 20, 2000 at 19:34:53 (CST)

I am a 46 Year old female with Hep c that i got from a contaminated needle that I was using on a client
Carol
council bluffs, iowa USA - Sunday, February 20, 2000 at 19:09:29 (CST)

was at your sight today and talked to kev, he helped ease my mind a little but still very scarred. was diagnosed three years ago and didn't believe, now I am tired and nausous all the time have to go see specialist sometime soon not sure yet when
Bill
moscow, PA USA - Sunday, February 20, 2000 at 09:39:06 (CST)

have been on combo treatment 6 weeks . good luck to everyone
becky
houston, texas USA - Saturday, February 19, 2000 at 22:45:30 (CST)

I need to know if anyone knows a good doctor in the New York area. Because I havent had any luck the doctors seem to know less than I do. I was on interferon but had to be taken off. I am constantly tired and depressed. It was a relief to read the guest book and know im not alone
PATRICIA
BROOKLYN , NY USA - Saturday, February 19, 2000 at 18:13:24 (CST)

Have known about the dragon since 96. The dragon sure taught me how to live. I do diet,work out and run all the time.Best physical shape I have ever been in. Not sure if excersize and diet help or not but it makes me feel like I have some control over this. It helps to talk to others in the same boat. E me any time
Joe K
Reseda, CA USA - Saturday, February 19, 2000 at 14:30:00 (CST)

Good luck to all in treatment.
carl
semmes, alabama USA - Saturday, February 19, 2000 at 09:53:06 (CST)

I will be starting my treatment monday feb. 21 2000 for hepc
carlton
semmes, alabama USA - Saturday, February 19, 2000 at 09:38:10 (CST)

Altho I was diagnosed about 21 years ago with HCV, I tended to ignore it, other than annual testing....recently, as a result of increasing fatigue, malaise & memory loss, I began to investigate it and am about to have a biopsy....any information would be greatly appreciated
Jane
NY, NY USA - Saturday, February 19, 2000 at 07:57:05 (CST)

I am very happy I found this page. I am at the end stages of liver disease, with both Hept. c. and Chirosis of the Liver. I am on the liver list and have been for 9 months now. I can feel awfull changes in my body,they (the drs,) say I have to get worse. I need friends right now. my family has backed 100% away and Thank God for a few friends and my lover. I hope and pray that this page was an uplift to them as it was me . Because i see nothing done about it. My lover and I went to the Pharmacest for about the 400th time. She said " you dont look like you have a thing wrong with you, your good looking and so on, WHY are you taking all these water pills" I told her whatI had told you from the beginning of the letter and she said. " I have never heard of hep. C.
I just about fell over. My whole point is, someone or some people are hiding it real good and I think it is the blood supply people and the drug co. Sincerlery, Joseph n. Steele
joseph
Holly, Michigan USA - Friday, February 18, 2000 at 22:44:48 (CST)

i was diagnosised with hep-c in april of 99. i'm trying to educate myself since every doctor i've seen is really ignorant to this slow killer.
lori
Woodruff, S.C. USA - Friday, February 18, 2000 at 20:58:23 (CST)

Hello, I have hepC. Don't know how or when I contracted it. Have been on Rebetron Combination Therapy for 1 month now. Seem to be handling the therapy pretty well so far. Although my hair is allready starting to thin. I hate that one. Not so sure how much faith I have in my medical providers. I guess time will tell. Good Luck to all heppers in their journeys through the disease.
Kathy
Ashtabula, Ohio USA - Friday, February 18, 2000 at 09:56:20 (CST)

I just clicked onto your page, dont have time to read now but will bookmark and come back. Looks good!!
Terry
MIDDLE SACKVILLE, NOVA SCOTIA CANADA - Friday, February 18, 2000 at 06:54:12 (CST)

Keep up the great work!! I only wish ther were more people here for me to talk to. I'll be back.
Janet
Homedale, Idaho USA - Thursday, February 17, 2000 at 14:06:06 (CST)

Help I just moved away from Bullhead City Az.Was told five years ago I have hep.C. the doctors kept telling me to wait for treatment because my results were 277000 and they wre not high enough to start me on any meds.Now I have no insur. and no job yet. Im starting to PANIC!!!!!!!!!!!!!!!
Cheryle
Long Beach , California USA - Wednesday, February 16, 2000 at 21:24:26 (CST)

Love your site! Washington Rally sounds interesting. How many folks attended last year?
Sophie Mae
Boston, MA USA - Wednesday, February 16, 2000 at 11:54:38 (CST)

Thank you for being here. I am 33 year old female who was just recently diagnosed Hep C. I have had elevated liver counts for 9 years and probably got it in my early days as a Certified Medical Assistant. I am very depressed right now and also very scared. I have my first gastro appointment tommorrow and hope my doctor knows more than I do. I have found so much information online, yet I feel like I don't know enough. I am terrified of the biopsy, I also have state health insurance and was told I would not be offered combo therepy due to cost. If my doctor tells me this tomorrow I will be crushed. If anyone has any advise at all please e-mail me. I also have severe asthma, if anyone knows if one will affect the other please tell me. Kepp the hope alive, that's all we have!
Siouxsie (Susie)
Portland, Oregon USA - Wednesday, February 16, 2000 at 02:47:15 (CST)

I've had hep c for 30 years..I have found that herbal remedies.......Sauna daily...And alot of water/liquids keeps my liver functions in check!
Rikl Tikl
Agoura, CALIF USA - Wednesday, February 16, 2000 at 00:41:18 (CST)

hep c, transplant list as a 3 being treated with Amantadine,riboviron and interfuron hcv-rna is less than 1500 6 more months to go if I can help, Holler
tom
snow hill, maryland USA - Tuesday, February 15, 2000 at 11:46:00 (CST)

Life is a challenge within a challenge. Never give up!
Kenneth
West Babylon, NY USA - Monday, February 14, 2000 at 22:37:26 (CST)

I'm just getting started as far as diagnosis and all that entails. Thank you for being here. I feel you are all I have right now. I'll help "the cause" when I'm able.
Denise
San Diego, CA USA - Monday, February 14, 2000 at 20:51:44 (CST)

I am the director of a small non-profit agency on Cape Cod serving women with chronic illness. There are many women in our community with Hepatitis C. This website is wonderful. Thanks for your hard work.
Irene
Provincetown, MA USA - Monday, February 14, 2000 at 15:27:53 (CST)

I was so happy to read Kevin's story this Sunday morning. I also found out that I had hepc about 3 yrs back when I was 40. I probably had it since a transfusion at age 6. Always been tired. My marriage is a shambles because of my lack of energy and inability to perform as a normal wife and mother of 5. I think I do ok, but my husband expects more than I can do. I find it generates a lot of anger on my part for his lack of understanding. I am trying to find support for myself in other ways. This website did it for this morning. Thanks...
Paula
Los Altos, California USA - Sunday, February 13, 2000 at 12:26:37 (CST)

My husband had HepC and we are trying to find more info on what types of food he should and should not be eating. There are so many conflicting reports on this and we are confused. If anyone can help, we aould greatly appreciate it! Please email me.
MARY
MORIARTY, NM USA - Sunday, February 13, 2000 at 11:19:35 (CST)

My friend asked me to check the computer for hepatitis C as her son was diagnosed and has gone down fast. Thanks.I have PKD and PLD and am ill at this time and it is slow going. Sorry I messed up the spellings before.I appreciate Puter leading me for info!
Virginia
Armona,, Ca USA - Sunday, February 13, 2000 at 00:13:13 (CST)

Iam PostTransplant 6Mo. Doing Great Did Gound work on Interferon As A Drug Study.Have Hope In New Meds.Faith In Modern Tech. Hold Your Head Up And Have Faith And Hope.
J Gaither
USA - Saturday, February 12, 2000 at 19:36:07 (CST)

Hi, we are adpoting a baby girl who we just found out today may have Hep C, they did her 6 month blood pathogens and found hep C to be reactive, the doctors office had absolutely no information, we found you thru webmd, your info said you could send us some brochures about hep c, we would greatly appreciate any info, we have 4 other children, and I don't even know how it is transferred, or if there is anything we can do for it now, or exactly what it even is. Please help us help our little one. Thank you
Julianna
Ferndale, WA USA - Saturday, February 12, 2000 at 02:55:41 (CST)

After being a non-responder to combo treatment and now on a regiment of herbs and vitiams I really do encourage all you new heppers to seriously DO YOUR HOMEWORK and not rush into combo before you really compare traditional treatments with non-traditional treatments. Actual statitics are very low as to those who combo really helps when you figure in that 60% of those that responded positively to combo relaped later. I'm NOT saying to
go on combo I'm simply telling to be wise and patient before jumping right into combo treatment.God Bless All Of You, Schueiler
Schueiler
Frenchtown, NJ USA - Friday, February 11, 2000 at 20:24:39 (CST)

Great Site and thaks for the support. It really helps knowing I'm not the only one.
Mark
Fort Campbell, Kentucky USA - Friday, February 11, 2000 at 16:09:31 (CST)

I was very taken by Kev's story! Amen and I support all HCV infected patients, as I am one myself! I am supporting the Texas Hep C Coalition now! I pray that our nation will help us fight for a cure for this deadly disease.
Melinda
San Angelo, TX USA - Friday, February 11, 2000 at 15:56:46 (CST)

My Brother was recently diagnosed with hep c.
audrey
flowery branch, georgia USA - Friday, February 11, 2000 at 14:29:23 (CST)

HI, just found this site.
Cheri
Hastings, NE USA - Thursday, February 10, 2000 at 21:59:20 (CST)

Please talk to me about hep !!!!
David
Roswell, NEW MEXICO USA - Thursday, February 10, 2000 at 15:44:29 (CST)

My almost dau-in-law is the one with the hcv (probably got infected 5 yrs ago). If there's anything that can be consdidered a "positive" to this disease, it's the fact that it's so slow in progression, because she needs all the energy her little 4'11" 95pound body can muster to plan this big wedding coming up this November! It scares us sometimes to think what may be in her future, but life comes first, and she's living it (with all the necessary precautions to help keep herself as healthy as can be otherwise). To all of you with hcv, whether on treatment of somekind or not, BIG HUGS... and to all you caregivers, Extra Hugs, because it effects you as much as it does the "victim"... Brightest of Blessings to All who read this...
Jan
California USA - Wednesday, February 09, 2000 at 23:27:54 (CST)

My roommate and best friend was diagnosed a year ago and has pretty much lost everything. She is being treated at Loyola Hospital in Maywood, Illinois. She is on a more aggressive treatment (interferon every day) and Ribavaron, and suffers constantly.

MY problem is that I am 38 year's old and have never really dealt with death or had a friend with such a tragic illness. I need a caregiver's group desparately. Can you help me.
Georgian
Chicago, IL USA - Tuesday, February 08, 2000 at 16:55:57 (CST)

3 weeks ago i started liverite!! SGTP was 307. As of yesterday it is 253. That is a hellava improvement. I will be taking them 4 more weeks and see what my level will be. I will never stop taking it though. Sid
pyscho sid
baton rouge, la USA - Tuesday, February 08, 2000 at 10:30:20 (CST)

Been through 1 year of ribovarin/inf treatment. The blood # went to zero, and now its back. Looking for other methods of treatment. Why does one company dominate our medicine, when it is unsuccessfull, and other treatments are supposedly on the horizon?? We need more info on future and experimental treatments to make intelligent decisions. Thanks, all!!
Hendrick
Fort Myers, FL USA - Monday, February 07, 2000 at 23:08:49 (CST)

Thanks so much for your website...it helps me cope, understand and help my husband presently under combo therapy.
Katherine
Yigo, Guam USA - Monday, February 07, 2000 at 02:45:48 (CST)

My husband finished 48 wks of combination therapy for Hep C. His LFT's are up again at 12 wks post treatment. We are trying to decide what to do next. Was wondering if any one else has done the combo therapy and how they came out. Also has anyone been on the PEG interferon studies and how did it go with them. Thank you, JC
JC
Hastings, Ne USA - Sunday, February 06, 2000 at 11:42:24 (CST)

I was told I have hep c in 1995,never did much about it.I keep up my crazy life style,drinking and so on.But in 97 I begin to have problems.Today I am on the combo terapy,YUCK, but I am giving it a try anyway.Most of the time I feel crappy, like I am half dead,or wish I was. But with the grace of God I will see this threw.Would like e-mail from any other heppers.Write to April at Chuckw@portup.com
April
Iron River, Mi. USA - Saturday, February 05, 2000 at 19:24:50 (CST)

I just found out I have hep-c. Could anyone help me
find a good doc. in Roanoke, Va.
Cathy
USA - Saturday, February 05, 2000 at 17:58:35 (CST)

This is a wonderful place. Wellness to all. Sheri
Sheri
Mo USA - Friday, February 04, 2000 at 20:07:04 (CST)

I just found out that my dad has Hepatitus C and has had it for about 5 years. If there is anyone out there who can help me talk about all the feelings I have, please contact me. I have SO many questions I need answered!
Thanks
Danielle
San Mateo, CA USA - Friday, February 04, 2000 at 00:34:08 (CST)

Just the place I was looking for. You are absolutely right about this being a lonely disease. But if you were to ask me How I am, I would answer " that it is the best day of my life ". Because I get to have one more.
Will
Morrison, CO USA - Thursday, February 03, 2000 at 23:37:22 (CST)

i have been diagosed with hepatitis cfor about a year and a halfwith hep c.i'm on interferon and hoping for the best.i feeel fine with some episodes of not feeling too well. I want to keep up with current lit and maybe help others going through the same stuff.
john
beltsville, md. USA - Thursday, February 03, 2000 at 13:44:08 (CST)

I know some of you and I am glad
Michelle
Brick, N.J. USA - Thursday, February 03, 2000 at 08:08:08 (CST)

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