Hepatitis C Coalition, Inc. is the
original non-profit, tax-exempt hepatitis C coalition
of patients and families dedicated to providing
and support through online communications, hep C hotline, and grassroots support networks across America.
We are advocates
for increased awareness and recognition of the seriousness of hepatitis C, and
our purpose is to help others learn how to live with it while we all fight for
stepped up research to find effective treatments, cures and vaccines.
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HEPATITIS C have ABSOLUTELY
NOTHING in common EXCEPT both are blood-borne
Although one person CAN develop both diseases, the two
mentioned above continue to be two completely separate
problems, often transmitted through infected blood!
While A True Cure May
Remain Elusive,There Is STILL Hope For
Controlling Hepatitis C!!!
(But first we need to know the truth
about the disease!)
By Kev Krueger
Cofounder, National Hepatitis C Coalition, Inc.
Anyone who has never been tested for hepatitis C (with the exception of
those born after 1992) probably should be. Forget about
so-called "high risk" groups that so many of our government institutions want us
to believe are the only ones at risk for hepatitis C infection. EVERYONE SHOULD BE CONSIDERED AT RISK FOR A
DIAGNOSIS OF HEPATITIS C. Most people may have had occasion to be
exposed to the virus at some time in their lives, either through past invasive medical
procedures or other methods not often discussed. Early diagnosis by simple blood
test can make the difference whether the disease is merely a nuisance, or
whether it becomes a full-blown life-threatening illness.
While I'm thinking about it I'm going to
answer one of the most common questions we receive from patients lately: "Aren't
Naomi Judd and that guy from Aerosmith cured?" The answer is that these two
individuals (and many others as well) have made such claims, but there still is
no test that is able to accurately measure absolute zero virus in the body
(current testing measures our blood, NOT what may be hiding in internal organs).
Without reliable testing to confirm that the virus is completely gone from theentire body, there's no way to know whether it's truly eradicated
or just hiding somewhere where it can't be detected, possibly to resurface at a
later time. We've known far too many folks over the years who were told by their
doctors that they were cured, only to learn years later that the virus was once
again detectable. People feel crushed when this happens because most of us would
like NOT to have to admit we've ever had this doggone disease in the first
place! The word "remission" is really much more accurate in these situations
anyway, and the word doesn't hurt our funding. Most people don't realize it, but
our Congress doesn't believe we need anywhere near adequate funding for this
disease because they think we already have a cure and don't need it - thanks to
well-intentioned individuals who've gone to Washington, D.C. and led our leaders
to believe accordingly. The strongest scientific evidence available indicates that
hepatitis C is NOT a completely curable disease and those who claim to be
"cured" of hepatitis C are merely practicing what might best be described as
"hopeful thinking". These folks may very
well be experiencing what is sometimes known as a "clinical cure", which
indicates that the disease isn't presently detectable by current testing methods but
there are no guarantees the virus is completely gone or that it might not
resurface at a later time.
Irregardless, If you've recently been diagnosed with
hepatitis C, please know that THERE REALLY IS HOPE,
no matter how progressed your disease may be, and no matter what you may have
been told, but in order to know if a person has it, they MUST GET TESTED!!!
read entire article . . .
DO YOU HAVE TATTOOS?
They may be the source of more hepatitis C infections than previously
(especially older ones)!!
TATTOO TIME BOMB
then go see your
doctor and insist on being tested for hepatitis C!
INDIVIDUALS PLEASE READ:
As much as we'd like to be able to provide information
and support to individuals who are incarcerated,
experience has shown that the majority of our mailings
to correctional facilities never reach those who need
them and are instead returned to us by the system.
We suggest instead that family members contact us and
make arrangements themselves to distribute our
information to their loved ones behind the walls.
Thank you for understanding.
issues concerning this website should be addressed
to include the words "HEP C" in the subject line of
your correspondence. Otherwise, it may be deleted
unopened due to the extreme problem with spam.
DISCLAIMER: Nothing on this site should be
misconstrued as medical advice and no claims made here
have been evaluated by the FDA unless otherwise
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This Page Was Last Updated June 27, 2012