Bev and Phil's Story
(by Bev)
I am a nurse
originally from Los Angeles. I lost my husband in 1997 to Hep
C/Cirrhosis/Hepatocellular Carcinoma. He was my whole life. My everything. We did the
interferon. He did really well for around four years and I kept screaming to the doctors
in this area of New Jersey and no one would listen to me. I kept telling them I felt it
was turning into cancer and they absolutely wouldn't listen. Ignorant and making much
money on bloodwork, bloodwork, bloodwork. Finally January 1997, his bloodwork
started going up just a little and I became so angry and insisted if they didn't run the
tests I wanted I would notify the news station in Philadelphia. They did the tests. One
radiologist said it could be cancer and the G.I. here actually took it around, I guess
until he found one that said no. (I found this out after the fact) THEN a month
later his bloodwork went up some more. I had not lived in this area long and I tried to
get him to go back to Los Angeles with me because I know some really good guys out there
but he didn't want to go. He trusted me completely, and we went through so much together.
I had to cause such havoc and they finally sent us to Philly in June and we were told it
was too late. He is now my guardian angel. I miss him so. He was the most wonderful
guy in the whole world and he never complained. His physical appearance didn't show
the signs until July. He became jaundice, incredible ascites and edema and eventually
hemmorage. I hate my profession for doing this. They do it to so many people. They act
like they know everything at the cost of others lives and making big bucks with the drug
companies using all their experimental drugs charging sky high top dollar money in their
fifteen room mansions and double Mercedes and country clubs----and I'm a
NURSE!!!!!!!!!!!!!!!!!! From the moment we found out he had Hep C, I MYSELF
ran the tests without permission because no one else would. I almost lost my job because
of it. In 1989 no one around here even knew what it was. I have studied
everything and anything there is to know about Hep C from top to bottom. The worst
thing is the lack of funding and it is even more prominent that AIDS! There are thousands
of people out there that don't even know they have it. That's why they call it "The
Hidden Epidemic". To me life is not worth living without my husband but the
one thing that is keeping me going is I will get to the bottom of it. I have decided to
devote the rest of my career to Hep C. I have decided to dedicate my continuing career to
the study and research of this disease and I will continue to do so as long as I can keep
my head above water . Financially I don't care if I have to live in the street to
continue this. I'll do it. I'll go sit on the Presidents doorstep if I have to. Wake up
America. It's all about money damnit and that's not what health care and taking care of
people is all about.
The opinions expressed on
this page are solely those of the author and none of the information included is to be
misconstrued as medical advise.
Any
issues concerning this website should be addressed to:
Be sure to
include the words "HEP C" in the subject line of your
correspondence. Otherwise, it may be deleted unopened
due to the extreme problem with spam.
Last Updated
January 03, 2010
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