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Hepatitis C is difficult to understand, and there are LOTS of "experts" out there who are more than willing to take advantage of the uninformed.  Please feel free to call our National Support Line for more detailed and personal attention related to hepatitis C (number listed above).

The folks who keep the NHCC in operation are unique people. ALL are volunteers who help fund our daily operations, tend to our telephone support lines, attend health fairs, and do just about anything necessary to help the NHCC continue to operate. These folks are required to have extensive and personal hepatitis C experience behind them before speaking to patients or family members about the disease, but this is just so we can make sure that what's shared is honest, trustworthy, and that our reputation remains stellar and accurate as always.

Times are difficult for most folks and money is tight. However, we too have significant expenses just keeping the NHCC in operation, and this is why it's so important that we reach out to good people like yourselves who will help us remain active for the "cause".

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CLICK HERE FOR NATALIE COLE'S VIDEO INTERVIEW
A discussion with Larry King about her need for kidney transplantation after only 4 mo. of hepatitis C treatments!

 


Donna's Story
By Donna

My name is Donna and in 1989 while giving birth to my twin sons by c-section i had complications and required a blood transfusion.  That's how the docs think i got the virus due to the high viral load, didn't look like tattoo or needle stick or etc......anyway I was diagnosed with cervical and uterine cancer in 1994 and during the pre-surgical testing they discovered I had hepatitis C.  

I lived through the cancer, but come 1999 upper quadrant pain and fatigue came along.  I had testing and liver biopsy, and my liver was pretty eaten up. When I  found out through Johns Hopkins Hospital that a living donor was possible, my sister stepped up and tested compatible to be a donor all the way until 2 days before surgery.  They had taken another look at her cat scan and noticed that right where they would have to separate her liver there was an artery and the surgery would be too risky.  This was a hard blow as I was getting considerably more ill, but nothing was worth risking my sister's life.  

One of my twin son's had a husband and wife mentor team (big brother and big sister) the husband Steve McCann decided he wanted to be the donor for me.  I couldn't believe the brave act he was prepared to do for me especially considering that he and his wife had a 17 month old boy, their first child.  Steve went through all the neccessary testing and on 12/10/01 we had a successful 21 hour surgery.  It has been 6 1/2 months and I am doing quite well and so is he.

Now we are doing fundraising due to the fact that my work 3 months prior to the transplant called me into the office and told me I was suspended without pay and told to leave the office because they felt I was contagious and the other employees felt threatened.  I had been the medical billing supervisor for 5 years, and was a very faithful hardworking employee despite the hepatitis C.  It was a pain management practice, so the doctor I worked for was also a treating physician of mine (supposedly) I had a lot of pain from my spleen and he could have done a procedure to block the pain but instead he treated me with narcotics, which eventually lead to a high tolerance and addiction.

The doctor I worked for had used my confidential information against me and my chart became public knowledge for all of the staff to see. They knew I needed a transplant but I never told them why. Apparently they must have helped themselves to my chart.  I could not believe that a medical office was throwing me out because of hepatitis C, as we had many patients with hep C as well as HIV.

Anyway I now have an attorney and have filed a complaint with the Department of Labor, but the staff and management from my former employer is lying. They're saying they've seen me bleed and I was a threat to them. I have been so degraded and so back stabbed that I am devastated.  I've written to the press, because I want this story told. I want people to know what happened to me so that no other employer ever does this to another employee again, but I just can't get the story out.  I see some pretty unimportant issues that get attention on TV and the newspaper but few like this one. I need to let the public know that employers can not do this. This is not acceptable and the public also needs to know exactly how the virus is transmitted so that no one else has to go through what I went through.

 

The opinions expressed on this page are solely those of the author and none of the information included is to be misconstrued as medical advise.

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Last Updated March 20, 2012